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Good morning all, hoping to get some information from CD or UC patients regarding their journey with either of these or any other IBD.
I have had abdominal pain and severe constipation for almost a year. Pain is primarily in the upper abd, pretty much ongoing with intermmediate both sides and under rib cage ranging from gnawing burning pain to sharp and barbed wire feeling pain that actually feels as if it's being pulled internally from right upper to left side.
I had a cholesysectomy in Nov advised biliary dyskenesia. Gall bladder was fine but removed due to primary biliary duct was the size of a coffee stirrer and removed as well. Due to continued pain, surgeon ordered CT-findings were severe inflammation and several air fluid level bowel loops in upper and lower bowel-stated indicative of enterocolitis. Three weeks later, gastro ordered a stat MRI full abdominal due to elevated alpha-feto-protein marker. MRI was stated to be completely normal and unremarkable.
Furthermore, according to lab and gastro office nurse, there was no alpha feto-protein test performed therefore no results of such. The only abnormality in labs was ASCA IGG was 55.9 (very high) (normal range for non positive is 0-20U) and abnormally low anion gap of 5 (normal 7-??).
Pain has continued and had actually gotten worse along with symptoms as noted above. After taking 2 meds for ulcers, anti spasmodic and Linzess for nearly 2 months my pain had finally started to ease up. - Until starting prep for colonoscopy and endoscopy. The pain has returned-it actually started during my prep for scopes. I am hoping my belly is just irritated from forcing my colon to cleanse for procedures.
Just had upper endoscopy and colonoscopy yesterday. The physician indicated both were completely normal (only a small polyp) and to followup with gastro in 4 months.
I am extremely frustrated and feel as if no one is listening to my concerns. The pain I am experiencing is real and some days to the point of nausea from the severity.
Any suggestions or stories similiar to mine would be greatly appreciated.
Thanks All.