caret icon Back to all discussions

Covid Jab and Risk of Flare....

Hi,
I am really not sure what to do for the best. I havent been jabbed yet because I have seen posts on forums from various people having flare up's soon afterwards.

I nearly lost my bowel in 2010 and was in hospital for 2 weeks. I was put on Infliximab and Azathioprine. I have had only 1 small flare since then, I count myself very lucky. I am scared that if I have the vaccine, then I could flare and go back down that road again.

I know its a double edged sword because if I get Covid then it could be worse but i'm simply not prepared to risk it just yet... What are peoples experiences please?

Thanks in advance,

James.

  1. I totally understand . I have flared after vaccines but I now have Covid. 5 days in I seem to be recovering. I am now glad I have had vaccines.

    1. I have 0 experience with these vaccines, as none have been studied long term and i refuse to be a guinea pig. Also, with such a high survival rate, i don't fear getting the virus at all.

      1. I can see this perspective! Thank for sharing. That being said, I ended up getting vaccinated with Moderna (plus a booster shot) because the long term effects of COVID itself haven't been studied. Having read many stories of Long COVID, I decided personally that I didn't want to run the risk of increasing how sick I feel in the longterm since I already have chronic illness.


        Hope you are doing well today!

    2. I have had to Pfizer's and had no side effects at all.
      ~ Sahara (team member)

      1. New here but not new to uulcerative colitis (UC) which I have had since at least the 1980's, including an episode of colon cancer 24 years ago and removal of part of the large intestine. For decades I have generally been without symptoms, or nearly so. I had the first Moderna shot last May, which immediately led to a bad flare which it took me about 6 weeks to work out of. I had the second Moderna shot in July. Similar reactions, but milder at first and I thought I could work out of them. Unfortunately, things simmered, gradually got worse, and then, in early November, blew into the worst flare I have ever had since the cancer incident. I have become almost a prisoner of the house, tethered to the bathroom. I have been on heavy prednisone for 12 days to try to bring this down. I think some progress has been made, but it is so slow that I am not sure yet. This is a survival level event. I am sure that a lot of people will not want to read this, but I felt obligated to put the facts out there.

        1. Thank you for sharing your story. I'm so sorry this was your experience but I commend you for being transparent and honest. I really hope you feel better soon. Sending strength your way, Elizabeth (team member)

      or create an account to reply.