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5 Things You May Not Know About Crohn’s Disease

Many people believe inflammatory bowel disease to simply be a “bathroom disease.” They don’t realize how much more complicated these diseases are and how varied the symptoms can be. Here are 5 things you might not have realized about Crohn’s disease and ulcerative colitis.

1. There is no test to instantly diagnose Crohn’s disease

This is a difficult reality and the reason many people go for years before getting an official diagnosis of Crohn’s disease or ulcerative colitis. For many diseases, there is a simple blood test or biopsy that can be done and instantly show whether or not a particular disease is present. To get to a diagnosis of inflammatory bowel disease, there are a number of steps that are usually taken, often starting with a physical examination and the testing of blood, urine and stool samples. If the tests point towards IBD, the next step would likely be a scope—either through the mouth (endoscopy) or through the anus (colonoscopy)—to check for inflammation along the digestive tract. This is often when a diagnosis will be given, but in some cases it still may remain undiagnosed. Another option is through the use of x-rays, where the patient will have to drink a solution that highlights their digestive tract and most often have either a CT scan or an MRI. Unfortunately, a diagnosis often comes as the result of the process-of-elimination of other potential diagnoses, rather than a direct diagnosis of inflammatory bowel disease.1

2. There are different types of Crohn’s disease

The type of Crohn’s disease is dependent on its location in the digestive system. The common diagnoses are gastroduodenal Crohn’s disease (stomach and first part of small intestine), jejunoileitis (second part of small intestine), ileitis (last part of small intestine), ileocolitis (both the small intestine and colon; most common type), Crohn’s colitis (colon only), and perianal disease (anal). Symptoms for each type of Crohn’s disease can vary depending on the specific diagnosis, from nausea and vomiting often seen in gastroduedenal CD to fistulae and abscesses in perianal disease. Treatments will also vary based on the location of the disease.2

3. The disease is in the digestive tract, but that’s not the only part of the body that might be affected

Despite the name, inflammatory bowel disease does not merely affect the bowel. While the direct symptoms of IBD are relegated to the digestive tract, between 25-40% of IBD patients with have complications in another bodily system. Inflammation can affect the skin, eyes, liver and joints. Arthritis is a common complication and can affect most any joint in the body. Osteoporosis is also seen in many IBD patients, and can be due to the disease itself or some of the medications commonly prescribed.3 This goes to show that IBD is not simply a “bathroom disease.”


4. IBD & IBS are very different

Despite the similar moniker, IBD and IBS are very different in presentation and treatment. At the core of inflammatory bowel disease is inflammation present in the digestive tract. Symptoms include bloody diarrhea, abdominal pain, and malnutrition, with complications ranging from bowel obstructions to an increased risk of colon cancer. It is systemic and, as mentioned above, it can impact nearly any part of the body, currently incurable and in some cases fatal. It is treated through a variety of medications, including biologics, and often surgery.4

Irritable bowel syndrome may share a few symptoms with IBD, such as diarrhea and abdominal pain, but it is located only in the large intestine and does not include the underlying inflammation. Despite the discomfort and sometimes pain, the intestinal tissue is still healthy. IBS does not include fatal complications and the symptoms are often managed through diet, lifestyle and stress, with no additional risk for cancer.5

5. We do not know the cause of Crohn’s

Researchers believe that genetics, autoimmune reaction and environment play a role in the development of inflammatory bowel disease, but the exact cause remains unknown. Diet and stress are shown to aggravate symptoms, but do not cause any form of IBD.6 Much research is being done in regards to genetics and microbiome and holds the hope of finding a specific cause, which could potentially lead towards individualized treatment, prevention and even a cure.7

How about you? What are some other things many people don’t know about inflammatory bowel disease? Share in the comments!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

  1. UNC School of Medicine. (n.d.). UNC Multidisciplinary Center for IBD Research and Treatment: Diagnostic Procedures. Retrieved from
  2. Beth Israel Deaconess Medical Center. (n.d.) What are the types of Crohn’s disease? Retrieved from
  3. Levine, J. S., & Burakoff, R. (2011). Extraintestinal Manifestations of Inflammatory Bowel Disease. Gastroenterology & Hepatology, 7(4), 235–241.
  4. Mayo Clinic. (2015, February 18). Inflammatory Bowel Disease (IBD): Symptoms. Retrieved from
  5. Mayo Clinic. (2014, July 31). Irritable Bowel Syndrome: Symptoms. Retrieved from
  6. National Institute of Diabetes and Digestive and Kidney Diseases. (2014, September). Crohn’s Disease. Retrieved from
  7. Crohn’s & Colitis Foundation of America. (n.d.) Current Research Studies. Retrieved from


  • Me1956
    3 months ago

    Very informative article. I think that people need to know that Chron’s does not cause everyone to have diarrhea, people can have constipation instead or also. I feel sometimes that people do not understand all the symptoms one can have with Chron’s, not even some doctors. It is nice to have a place to go to read information & hear that others have some of the same issues.

  • Pam.Kingsland moderator
    3 months ago

    Hi @me1956! You’re absolutely right. We hope that by sharing these experiences/articles and advocating to raise awareness will help more people understand the ins and outs. You are certainly not alone in feeling this way and I’m so glad you’ve found our community! Please reach out anytime. We’re here for you! 🙂 Sending well wishes – Pam (team member)

  • Julie Marie Palumbo moderator
    4 months ago

    This is such an informative article!! I am sitting here nodding my head to every one, having experienced all of it.

    I think it is important for others to understand the complexity of Crohn’s and how it can present itself in order to better understand patients, and as patients, to better understand our bodies and manage our expectations of the disease. Thank you so much for writing this valuable and informative article.

    –Julie (Team Member)

  • thedancingcrohnie moderator
    1 year ago

    In addition to what was mentioned below, I’ll add Erythema Nodosum! The most painful experience ever!

    Always dancing,
    Elizabeth (team member)

  • 3 years ago

    Depression, anxiety, mood swings, isolation, fatigue, fevers and night sweats, can’t keep a job leading to financial difficulty, bullying, embarrassment, constantly being told “you don’t look sick”, “it’s all in your head”, “I had food poisoning once, so I know how you feel”, “maybe you should change your diet”, “I had a friend who had Crohn’s and they committed suicide”< (my personal favorite)…and too much more (un)helpful advice to mention! So frustrating!!!

  • Stephanie Hughes moderator author
    3 years ago

    It is so frustrating! Especially as you’ve just illustrated how many things can come out of living with IBD that most people wouldn’t even think about. Dealing with the uneducated comments is arguably the most frustrating part.

  • 4 years ago

    Fatigue!! You get soo freaking tired it’s not funny

  • Stephanie Hughes moderator author
    4 years ago

    Yes, I completely agree! Before my diagnosis, I never would have thought how exhausted I would feel so much of the time. If you’re interested, one of our other bloggers wrote a great post about this: IBD can make you feel lazy.

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