If I Had to Go Back to the Hospital These Days

I am happy to say that I have not been in the hospital since 2014.  For me, that is a very long time.  I don’t plan on going to the hospital, but with Crohn’s, you never know.  Many of you read about my long stay in the hospital in my last interview.  I have had a few days in the hospital after the long year and half one.  The most recent was a blood infection that I got just because my immune system is low.  My blood cultures did not come back great, and I had to stay in the hospital for five days.  Well, when I am in the hospital, I know the ins and out. I know too much about what is going on, and sometimes that is not a good thing.

I don’t care what anybody says, it is impossible to sleep in the hospital.

You have the patient down the hallway who is screaming.  There are tons of machines beeping.  The nurses keep coming into your room to check your vital signs every four hours.  So what I have to tell the nurses is that I have trouble sleeping at night.  I am a young guy who doesn’t need much help, so I want to make the nurses job easy.  I tell the nurses that I want to take something to relax me at night, the hospital doesn’t allow me to get any sleep.

When I was in the hospital for the year, they would give me twenty-five milligrams of Benadryl IV.  I would fall asleep in a minute.  It was harder to get it IV in 2014.  I guess the nurses didn’t want me to get addicted to it.  I understand what they were saying, but I was taking it for five nights, and I don’t take it when I am at home! Most of the time the nurses gave it to me just to shut me up.

I was very good at convincing the hospital staff to let me take walks around the buildings.

I hated staying in my room, and on days when I felt good enough to walk, I wanted to walk.  Of course there is a liability issue when it comes to allowing patients roam the around the hospital, but last time I was in there, they allowed me. Believe it or not one of my first dates with my fiancé was to the cafeteria in the hospital. I was going to meet her parents for the first time that Saturday night in 2014.  This sudden illness did not allow me to meet them for dinner.  My doctors allowed me to take Naomi downstairs to have dinner, though. Of course because of the Crohn’s, I had to watch what I ate.

So I know with most of us “cronies,” we have to spend some time in the hospital. Try to make your time in the hospital fun. I know its hard.  If you know you’re going to have to stay there a while, try to stay calm.  Breathe.  You will get through.

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