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IBD In America: What’s That?

A diagnosis of Inflammatory Bowel Disease (IBD) can bring about an array of emotions, from frustration to relief. The lack of information and research available for patients and their loved ones can make it even more difficult. Many people quickly jump online to research the ins and outs of IBD but have trouble finding reliable information. Even more difficult can be finding someone who has actually been through IBD to connect with and share experiences.

How can a survey help?

The IBD In America survey is an annual survey on that seeks to close some of these gaps. The survey covers “basics” like diagnosis and treatment experiences, but also dives into the nitty gritty, like the emotional impact and the seemingly “small” day-to-day challenges.

Each person that takes the survey contributes to a better understanding of IBD and can help others who are going through it feel less alone. Sharing experiences in the survey can reveal how similar each person’s journey with inflammatory bowel disease is, as well as the differences that make each journey unique.

What happens after I take the survey?

After the survey closes each year, the Editorial Team at takes your responses and creates an infographic filled with information about life with IBD. But that’s not all – over the year, we publish articles based on learnings from the survey, like this one about experiences with diagnosis or this one about experiences with remission. Each article published using responses from the survey contributes to the information available to those affected by IBD and helps them connect with those who have walked the same path.

The 2019 survey is now closed

The IBD In America 2019 survey is now closed! Thank you for sharing your experiences in the survey. One voice may seem like it won’t make a difference, but each voice can change how others perceive life with IBD and bring comfort to someone coping with his or her diagnosis. Stay tuned for the 2020 survey!


  • thedancingcrohnie moderator
    11 months ago

    Great survey!

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