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My Favorite Day

My favorite day is a day some would consider the most difficult. Some would honestly dread my favorite day, but I love it. My favorite day is *drum roll please* injection day! To a “normal” or “healthy person,” this day might come with great aggravation or sadness. They may be shocked or overwhelmed by the whole process, but not me.

My favorite day is injection day

Injection day is my favorite day because I know what it’s like to go without the life-saving medications I need. It’s my favorite because although the needle hurts, the pain of life with active inflammation is much much worse. So I am grateful. For every stick, prick and poke. I am grateful for every nasty pill and sharps container. I am grateful for the things people often take for granted or don’t think about at all.

I tell myself this: On the days I inject my $20,000 medication, I could approach it from one of two ways.

I could be angry on injection day

Frustrated with the process. Mad at my body. Cursing my life. Myself. My God and everything in between.

I choose to appreciate the injection days

Appreciating my low to no out of pocket for the drug in comparison to what I could have paid. Appreciating the groundbreaking research that took place in order for this drug to come to the market at all. Appreciation of my doctor and amazing healthcare and healthcare professionals who have arranged my access to this medication. Appreciation of how far I’ve come because of this drug.

My medications give me control over my life

My favorite day is my favorite for a reason. As someone who’s lost so much time and money to a condition so out of my control, I am so appreciative of anything and everything that gives me at least a portion of the control over my life back.

My favorite day is hard.

It’s hard on me and those around me. It’s hard on my family, even friends. No one wants to see me in such a vulnerable state. No one wants me to need any medication, so of course, watching me inject this into my body is difficult on them. And of course, I hate being the reason why so many of them hurt. I know it hurts them to walk through this condition by my side. I know with every medication they are only reminded of the last and possibly the one before that.

Medication injection day is necessary

…And until it’s not… Until there is a cure or a day that I don’t absolutely need my favorite day…It will remain the same. I will continue to remind myself of the importance of my medication, even when others hurt for me… or worse… shame me for it. I will continue to remain grateful and remind myself of what life was before my favorite day and how many times I prayed for the days I am currently living. This is not to pretend as if every day is a breeze, because it’s not. It gets difficult and I struggle at times, but I refuse to allow myself to stay down.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Julie Marie Palumbo moderator
    2 months ago

    This is a great article, Shawn, because it shows the silver lining in an otherwise unpleasant experience. You are so right in highlighting why it is the best day, and all of the good that comes out of it. Thank you for this little ray of sunshine article 🙂

    –Julie (Team Member)

  • Shawn Bethea moderator author
    4 weeks ago

    Thank you Julie! Your comment and support seriously means so much! – Shawn, Team Member

  • Jaime H moderator
    2 months ago

    I. Love. This. (and you; but I digress)

    So much negativity about “shot day” is available on the Internet. I so look forward to shot day on this particular treatment, but you made me take pause and review my feelings on past injectables. My feelings are that while I did not look forward to the pain or discomfort associated with those particular treatments, I looked forward to remaining feeling better and the help they provided.

    A few seconds to a few minutes of discomfort in exchange for many days and weeks of good. I’ll take it! Your last paragraph is everything.

  • Shawn Bethea moderator author
    4 weeks ago

    Aw thank you girl. That really means a lot to me. Sometimes I feel like I’m talking to myself when sharing things like this so it’s good to see it resonating with others xxx 🙂 – Shawn, Team Member

  • thedancingcrohnie moderator
    2 months ago

    Great outlook! I too have to self-inject, and although I wouldn’t call it my “favorite day” I can absolutely relate to all that you are saying. You are correct! We are lucky to be approved for the drug. To have access to the drug. And to be able to afford it. Many things to be thankful for.

    I hope you are doing well these days!

    Always dancing,
    Elizabeth (team member)

  • Shawn Bethea moderator author
    4 weeks ago

    Thank you so much friend! I try to keep a positive outlook *for the most part* haha. As we both know, it can be a bit challenging at times. I really appreciate your support! xxx – Shawn, Team Member

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