My Weird Reaction to an Iron Infusion

By thedancingcrohnie

3 min read

Recently, I went in for an iron infusion, as I always have issues with iron deficiency anemia. I was diagnosed with Crohn's disease back in 2011 and have had so many iron infusions, I've lost count. I've never had a reaction to one.

I need iron infusions because of my IBD

I will say, over the many infusions I have had, I've had moments of discomfort but never a reaction. For example, I have had infusions where my vein literally hurt so bad that I asked the nurse to stop the infusion so I could take a break. From then on I always requested that they make my iron infusions extra slow and diluted even more with saline.

I also had a time or 2 where I would get home from an infusion and have terrible abdominal cramping and nausea. That has happened a couple of times but again nothing severe.

Well, this time around, I had quite the reaction. I am not trying to scare anyone out of an iron infusion, as I think they work great. But I do think it's important to share so that if you do feel these weird symptoms you can tell your nurse to stop the infusion.

How my infusion started

For the first time, my insurance did not want to cover my iron infusion which blew my mind because my iron was at a 19 and my hemoglobin at a 9, but that is neither here nor there. The point is, I asked my doc if we could try a different brand of iron and see if the insurance would cover that one. The brand was called Feraheme and I had never had that kind before and turned out that insurance ended up covering it.

So off I went to my appointment to get this new brand of iron and I was actually really excited. I was feeling great that day, had eaten before, and was very hydrated. I got there on time and even found superb parking. Things were just going really well.

The nurse got my IV going and only had to poke me once. We were chit-chatting and I just couldn't wait to get the iron so I could start feeling better.

Infusion reaction and nearly fainting

The iron began and off I went into my phone to listen to a podcast and zone out. Then about 5 minutes in, I started to feel a strange sensation in my right arm where the IV was placed. It felt like this warmth was traveling up my arm from the injection site and up into my shoulder. It was weird and I started to panic a little, but then internally I started telling myself to calm down and take deep breaths, which I did. Then suddenly that weird feeling moved from my right shoulder into my chest and within seconds I started seeing black dots.

I immediately yelled to the nurse who was sitting in front of me, "I don't feel good. Something is wrong. Something is wrong." Immediately she jumped up and turned the IV off and I literally thought I was going to faint.

I then couldn't catch my breath and my face turned tomato red, it was the most bizarre thing. By then I had 2 doctors and more nurses walking me through breathing and making sure my vitals were okay. It was so scary and I'm so happy I didn’t faint because I really thought I would as all the black dots almost consumed my entire vision.

Have you had a reaction to an IBD treatment?

Overall, I was in great hands and felt so well taken care of. I eventually went home and was fine, but I couldn’t believe I had a reaction to iron! How strange.

Have you ever had a bad reaction to an iron infusion? I'd love to hear from you, comment below.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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maria444 Member
<inline-mention username="thedancingcrohnie" user-id="2240052"/> hi i’ve had a similar experience as you. i have chrons disease so my iron was quite low since i couldn’t eat properly so the doctor recommended me to take an iron infusion. my iron infusion started and after 2 minutes i started to see bubbles around me, at first i thought something broke but then i started to experience my throat being closed, i struggled to breathe, my hands were purple. i started shouting “ nurse” and eventually the nurse came over and stopped everything then another nurse came over and injected me with something that made the reaction stop. i was so traumatised my legs were shaking, i could still see random bubbles but my breathing was fine which was good. it was a scary experience they said to me it was rare and not to take them ever again. bare in mind i did my iron infusion at a different city outside my area as i was visiting my cousin and my stomach was hurting really bad so it was an emergency. i have been going the doctors every 2 weeks because of my chrons and they have recommended me to take iron tablets instead but they still didn’t work as i felt so sick and was in pain 24/7 and since they didn’t work they recommended me to do an iron infusion which is safe and recommended for people who have chrons. i immediately refused as what i experienced was traumatising and wouldn’t wish it on my enemies. they then also reccomended me to see a psychologist about my anxiety. so i don’t really know what to do as it is a risk and i am so scared to do it again.
1. thedancingcrohnie Moderator & Contributor
 <inline-mention username="maria444" user-id="8540634"/> I'm so sorry you went through that. That is so scary! I know the feeling too well. I wouldn't do it again, considering your reaction. Google foods with high iron and start eating a ton of it. I started eating beef liver capsules. Also, black strap molasses is a great source of iron. Try to get your iron intake that way. I really hope your flare improves. This is a hard diagnosis. Make sure to eat foods that are gut healing. It is helpful to improve the flare. Big big hugs to you. Reach out if you have any questions. Hugs, Elizabeth (team member)
maria444 Member
<inline-mention username="thedancingcrohnie" user-id="2240052"/> thank you it means a lot ! i don’t think i could do the iron infusion as it is so risky and you could never know what will happen. my iron is very low and i might take some spatone. are the black strap mossales tablets or? and do they taste horrible or give you any side effects?
1. thedancingcrohnie Moderator & Contributor
 <inline-mention username="maria444" user-id="8540634"/> I never tried the black strap molasses. It is liquid. Like syrup. You take a teaspoon I believe. Definitely look into that option. I believe it is easy on the stomach to digest. It shouldn't taste horrible. -Elizabeth (team member)