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Taking Advantage of the Good Days With Crohn’s

When I stopped working full-time, I had a running list of things in my head of things I wanted to do. There were things I wanted to catch up on, people to catch up with, and places I wanted to visit. I couldn’t really do any of these things while working full-time because weekends became resting days. When my husband was off on a weekday, I couldn’t get up and go with him because I was working. But even after going back to freelance, I found there were weekdays where I made excuses to stay home. I was definitely not taking advantage of the good days with Crohn’s.

Would you be surprised if I said I still haven’t yet caught up on that list?

Missing out with Crohn’s disease

Now that my schedule is a little more relaxed, I’ve had time to think and overthink some more. One day while listening to a summer storm roll through, I had an epiphany. I have definitely missed out on experiencing the good days while working. Then when the second epiphany struck, I grew mad at myself. When I wasn’t working full-time over the past few years, there wasn’t much-taking advantage of the good days with Crohn’s, either.

But old habits die hard. Even on good days, I rarely go out and do things like my peers. This is because I’ve been living with the after-effects from a bad Crohn’s, Psoriasis, and Psoriatic Arthritis flare since 2012. When it hit, it shifted my personality on prioritizing energy and going out. Living in Florida makes things exponentially harder due to excessive heat. Leaving the house for an hour can burn out even a healthy person, let alone someone living with Crohn’s disease.

Ways to take advantage of symptom-free days

So, as I listened to the drops of water pound against the windows, I started a list for taking advantage of the good days with Crohn’s. Here’s what I came up with:

  1. We live under a mile from a beach and are on the west coast. Yet, we have never stopped to watch the sunset.
  2. Attend a DIY workshop at the local Hardware Store.
  3. Pick a place we’ve never been that is within a few hours from home and go on an overnight trip.
  4. Go to one of the fifty new restaurants that opened around us. We seem to end up at the same ones time and time again.
  5. Finish painting the last two rooms in the house.
  6. Learn to garden. This one is harder because it’s so dang hot outside. But I’ve been told that it’s calming and has some great health benefits.
  7. A deep dark secret of mine. Learn to drive a stick shift. I have never learned.
  8. We live an hour from major theme parks and have never gone.
  9. Go with friends to a cold spring and float down the lazy river.
  10. Day drink! This may sound funny to some, but I’ve never done it. My teacher friends do it a lot during the summer, but for as long as I’ve had health improvements, I really haven’t participated. I should!

Taking advantage of the good days with Crohn’s disease is important. Good days can come about as randomly as an uptick in symptoms. What are some things you haven’t done and think you should do?

Tell me, I want to know!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Matt Nagin moderator
    1 day ago

    I love the beach. I try to make time to go a few times a year as I find the fresh air and sun to make me feel much better. Whenever I’m feeling especially good I try to use that time to work on writing and get errands done, which can be close to impossible to do when I am feeling sick.

  • Julie Marie Palumbo moderator
    4 days ago

    This is a great list, Jaime! I love the “drive stick shift” line–great idea! I feel like I take where I live for granted, as historical Philadelphia (the Liberty Bell, Independence Hall) are just a few blocks from me and I also neglect to take advantage of great places to sight see and walk around. Thank you for bringing this to my attention 🙂

    –Julie (Team Member)

  • Sahara Fleetwood-Beresford
    5 days ago

    Ugh, yes! Even just working part time, my weekdays were for work and the weekend was for cleaning and resting!
    I had so many hopes for when I became freelance, but I haven’t quite achieved them yet. I am having one of those phases in life where it’s just one thing after another, and so I haven’t managed to get into a routine yet!
    I also just got a new house, so it’s all hands on deck with that at the moment! I am determined that once I have moved I will form a routine which involves a decent meal at the same time every day and some exercise! Fingers crossed!
    It sounds like you have so many fab things to do near you! Good luck!

    – Sahara (team member)

  • thedancingcrohnie moderator
    5 days ago

    I live so close to the beach and I never go. I need to take advantage whenever I feel well to take a dip in the ocean. It’s also so therapeutic for the body and mind. I would say that’s top of my list right now.

    Elizabeth (team member)

  • Kelly C (#purpleproject) moderator
    7 days ago

    I know I overdo things. That’s how I’ve always thrived though. It’s a hard habit to break. but really.. do I want to? If I didn’t overexert myself on those days, I wouldn’t get half the work done I can on “good” days.

    Do people have comments & unsolicited opinions about it? Yup, sure do. I’ve gotten used to that, but it still grinds my gears. I just try my best to focus on the tasks at hand and enjoy myself when I’m feeling well.
    Kelly, Team Member

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