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Your Whole Life Has Changed.. Now What?

Dear Friend,

I know that you have just been diagnosed with Crohn’s disease or ulcerative colitis and that you’re sad and angry. I know that you’re probably mad at the world, wondering “Why me?“. I know that you think that your life as you know it is over. I know because I’ve been in the same exact spot that you are in right now.

When I was diagnosed with Crohn’s disease in 2012, I was scared and angry too. I was mad at the world and though that I’d never be happy or healthy or do anything that I loved ever again.

Over the last four years as a diagnosed Crohn’s disease patient (and undiagnosed two years before that), I have learned a few things about adjusting to life with an autoimmune disease. Back then, I wished that I had someone to share information, insights, and experiences with me on what life would be like.. so I want to be that person for you.

My advice to cope with Crohn’s disease:

  • Be kind to yourself. Learning to live with these diseases is probably going to be one of the most difficult things you’ll ever do in your life. Be patient and know that there will be a time in the future where you will be adjusted to your new way of living.
  • Do your own research. There is a lot of information out there on how to live with Crohn’s disease and ulcerative colitis. While multiple types of information from different sources is an amazing thing, it can also be overwhelming. Figure out what resonates with you and how you want to live with and manage your disease and go from there.
  • Treat your body, mind and soul well. While the disease that you are living with is thought of as mostly physical, living with an autoimmune disease affects our mind and soul too. Figure out how to treat your whole person well, utilizing different modalities and techniques, and see how your body responds. You might be surprised at what you find.
  • Love yourself. You might think that this has nothing to do with living with IBD, but it is a crucial piece of our IBD treatment that is currently missing. If we constantly think that we aren’t good enough, that we don’t love ourselves, and hate what our disease has done to us and our lives, is that really going to make us feel better and help us live well with these diseases? If this is your thought process (like it was for me for so long), it may be time to make a change. It doesn’t happen overnight, but taking small steps to changing your perspective on yourself and your disease could make a world of difference.

Please consider this advice and hold it close. Know that, even though life may look dark right now, that you will be okay. You will become a stronger and wiser version of yourself because of this obstacle that you face on a daily basis. In the meantime: love yourself fiercely. Know that you will have off days (and that’s okay), but keep moving forward and treating yourself with respect and love. Most of all, please know that you are good enough to live well with inflammatory bowel disease, that it is a possibility for you, and that I am always here for you, and for anyone in our IBD community if you need a friend.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • 4 years ago

    I was literally diagnosed yesterday, although my doctor has been treating me with steroids for a couple weeks now. I hate being on steroids, I’m like a little ping pong ball with a dent 🙁 I hate not working, having to depend on my husband. I hate the freaking pain. I want the doctor to just go in and take out the bad part, nope, won’t do that….
    we’re just starting to enjoy being empty-nesters and now I’m sick. stupid small intestines.

  • 4 years ago

    I appreciate the links and have found you on Facebook. it’s been great cause every day when I log in I get a new article. I have alot of reading and learning to do and I guess I’m going to figure out what works for me, and I’m thankful for this site 🙂

  • Dana
    4 years ago

    Hi clchambers515!

    I am very sorry to hear that you have been diagnosed with IBD, but glad to know that you have found our community! We now how tough these medications can be on the body. We have many members who are or have been on steroids who I am sure would love to connect with you to share their experiences and offer you some tips. In addition to those connections I have included some articles about being a newly diagnosed patient that I thought you might find interesting:

    We are so glad to have you as a community member! We are here for you.

    Stay strong and keep smiling!
    Dana ( Team)

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