IBD Advocates: Why Marisa Blogs.

IBD Advocates: Why Marisa Blogs

If you told me five years ago that I would be blogging and sharing my innermost thoughts, feelings and experiences in written form for the world to see, I would have rolled my eyes and laughed at you.

I was always such a private person. My parents were the only people who I shared things with and it was awful feeling like I couldn’t be ME to the rest of the world. I had a couple close friends who I talked to about certain things related to being chronically ill, but I would disappear whenever I was doing exceptionally bad, never would allow any visitors in the hospital, and just couldn’t imagine anyone seeing me at my worst. I was so afraid of being rejected that I just couldn’t worry about making sure my hair was washed and I was in my “nice pajamas,” etc. To me, it was extra stress so I just found it easier to do my own thing and not let people in.

I started blogging on September 10, 2012 and it was the best thing I could have ever done for myself. It opened up so many new and positive feelings, opportunities to make the world a better place, connect with others who understood, share advice, and so much more. I always wanted to focus on sharing my experiences, trying to educate people while infusing my own experiences in there so others knew I understood, and also hope to educate people and raise awareness along the way.

I wrote a post on my website a couple of years ago that I think is really relevant to this topic. The article I wrote is about how I often feel like I work so hard to depict the entire picture of life as an inflammatory bowel disease patient because that is what I so desperately needed when I was going through so much and feeling incredibly alone, despite having a wonderfully supportive family.

We All Advocate For What We Need(ed)

I always told my parents that in order for any of this emotional and physical torture we were all experiencing because of ulcerative colitis to make any kind of sense whatsoever, that I HAD to one day be able to use it to help people. It was the only way I could wrap my head around all I have had to endure because of this disease, and how much it has done to my family as well. In my mind, I needed to feel like there was a reason for it. Ever since I was a teenager, I wanted to help people who were suffering from Crohn’s disease or ulcerative colitis. I realize now more than ever that opening up and sharing even the vulnerable aspects of this disease and some of my feelings surrounding it is not only therapeutic for me, but it shows people they aren’t alone. And I will re-iterate again: THAT is the kind of support I always needed.

I love writing. I love blogging. I love sharing my experiences and helping other people suffering from inflammatory bowel disease. It is flat out an awful, wretched disease to have for so many reasons. I am very grateful that I have an outlet where I AM able to share and get the things I say read/seen by other IBD patients and/or caregivers.

For anyone who is considering blogging, I highly recommend it. I think writing in a journal is always a good first step also towards getting things out. I did for so many years -and continue to do very on and off now.

If you aren’t ready but toying around with it in your mind, you should not feel forced. Maybe familiarize with some blogging sites, write but make it all private initially? Sharing something you write with a person you trust (instead of a public domain) might give you more confidence and feel supported. Bottom line: be patient with yourself and your emotional state. It does take a lot to get things out in blogging form. It forces you to have to come to a level of acceptance you might not be ready for, you have to be okay with sharing parts of your life that are often difficult, among other things.

I may talk about how blogging has been an amazing experience for me, but it also took me 12 years to get here! Let things evolve naturally.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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