PeedieAnge1985
"Feeling very frustrated colonoscopy came back fine and still don't have a proper diagnosis evan though am still bothered with elevated Calprotectin, Feeling inflammation and in pain. On a good day today though. Got mri in a couple of weeks. Still worried they won't find anything when I'm not flared up at the moment. The flareups are very unpredictable fine 1 week and then flareups another."
Hi
, I did try to address this comment in another reply I posted to you. But I did just also want to say here that your worries are valid and understandable. You just want to get answers and it is frustrating (and discouraging) when the testing or imaging doesn't show the very real symptoms one is experiencing. As I mentioned in my other comment, the good news is that one doesn't necessarily have to be in the middle of a flare to be experiencing inflammation, so it's still possible they will be able to see something on the MRI even if you're not in the middle of a flare. And, while I can't say for certain this will be your experience, I'm crossing my fingers that you can get some answers!! Sending you gentle hugs! -- Warmly, Christine (Team Member)