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IBD (UC or Crohn’s) and Lupus???

I am wondering if there is anyone out there that has both a diagnosis of either UC or Crohn’s as well as Lupus? I am now 42, I had a total colectomy at 32, ileostomy and j-pouch for last 9+ years. I have been on Cipro for just about 9 years to keep pouchitis in check. Over the course of the years I have developed some minor/occasional head tremors and mouth movements. Over the last year I have seen some fairly significant weight gain (regardless of diet and exercise), fatigue and somewhat depressive type symptoms. I am also noticing water retention (especially in my legs and feet (not severe) and I had an unexplained blood clot in my leg back in December. I just recently had blood work done and my doctor said I had some “borderline” findings which are usually ignored. Three factors were significantly high Protein C, DRVVT and DRVC and I am also Vitamin B, D and calcium deficient. If any of you either have this dual diagnosis, are knowledgable about the different forms of lupus, or have had similar symptoms develop, I would appreciate hearing from you. Please help. I didn’t find the right solution from the Internet. References:- [url=]3D Product Video Animation Service[/url] Thanks!

Community Answers
  • MelBault
    8 months ago

    I am 19 years old and I have been diagnosed with both Lupus and Crohn’s. It’s pretty rare to have both, but there’s so much overlap between the two that it’s hard to diagnose. The main thing that my doctors used to confirm my diagnosis, is that 1) it was not drug induced (pentasa is very rarely associated with these symptoms, but because I had been on it for almost a year and a half before experiencing symptoms, it was very unlikely that it was due to this), 2) your IBD is in remission (IBD has been known to affect all of your other bodily systems and produce symptoms common to lupus as well), 3) obviously you fit the criteria for lupus… when all of those have been met (along with a slew of tests)… then, well… welcome to the exclusive club no one wants to be a member of

  • MelBault
    8 months ago

    I know this was quite a while back, so I’m hoping you’re doing better now!

  • Brooke Abbott moderator
    1 year ago


    I was originally diagnosed with Lupus. My grandmother had lupus and my cousin currently lives with it. I was told at IBD dx that they look similar in the blood work. I’m not sure if that’s true. But post surgery symptoms are often similar to my cousin’s.
    -Brooke Team Member

    1 year ago

    I was diagnosed with Chron’s in 2012 and was diagnosed with Lupus in March of this year. My doctor thought I have had Lupus for a couple years now but test always came back negative.

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