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10 years with Crohn’s

Hi there! Ten years ago when I was 12, I was diagnosed with moderate to severe Crohn’s disease throughout my GI tract. I started deteriorating over the course of several months. As a pre-teen, I didn’t fully realize that my health was in decline, but my parents could see it clearly. I went to my pediatrician’s office handfuls of time until one doctor finally stopped telling us I was perfectly normal.

That day, I saw a pediatric GI doctor and was admitted that night to the hospital where I spent almost two weeks doing tests and putting back IV nutrients into my body. I was very underweight, undernourished and experiencing stomach aches, diarrhea, nausea, vomiting, knee pain, mouth sores, and night sweats.

I spent the first year following my diagnosis on Prednisone and Pentasa. My doctors said diet had little to no effect on Crohn’s. My parents were extremely skeptical, but I basically stayed away from most dairy and that was it. Just over a year later, I became severely ill again. I was hospitalized two more times within a month of each other.

A relative suggested we see a different kind of doctor. He is an environmental doctor and would be considered alternative medicine, although what he does makes perfect sense. He improves his patients’ health by testing for food sensitivities and nutrient deficiencies, and based on that the patient follows this new diet and adds supplements.

Within weeks I was gaining weight back and my symptoms were diminishing. My conventional doctors didn’t believe this type of treatment works (getting closer to the root cause of symptoms instead of treating symptoms with meds). Nonetheless, they told me to keep doing what I was doing!

I am still managing my Crohn’s with a modified paleo lifestyle. Little conventional medicine has been used over the years, as I have found few medications that actually help. Along with lots of rest, self care, and supplements, diet has been a HUGE factor in my wellness.

I now connect with others diagnosed with Crohn’s, UC, and other chronic conditions and help them as much as I can through my blog, Girl in Healing.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    9 months ago

    Amazing! I have to say, the only times I saw the most improvement was when I went to a naturopathic medical doctor. I do see conventional doctors still but I consider my Naturopath my main doctor. He has changed my life!

    Thanks for sharing your story. So happy you are doing well.

    Always dancing,
    Elizabeth (team member)

  • BellaBeau4
    2 years ago

    Hi GirlinHealing- I am very interested in finding a doctor similar to the one you mentioned,that would test for food sensitivities and recommended supplementation. I’m in the NYC area.

  • SusanHU
    2 years ago

    Thank you for sharing GirlinHealing – we’re so pleased to hear that you have found something that works for you! Everyone’s experience is unique of course but it can be helpful to hear the options that are out there and we appreciate you sharing yours. We will hope that your success continues and look forward to hearing more about your journey. – Susan ( Team Member)

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