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29 years and counting

I’ve been diagnosed with Crohn’s for 29 years. My sons were just 3 and 1 when I started this horrific journey with Crohn’s. Although, at that time I didn’t fit into the neat little cube that most Crohn’s patients did. I didn’t have the list of symptoms that they generally followed so it was argument after argument with the GI doc. You see my little brother had already been diagnosed years before and I also have an Uncle who has Crohn’s as well. I just wasn’t fitting all of the normal patterns so it was time for a colonoscopy now that I had lost 24 lbs in one months time and I was weak. My muscles had shrunk. I spent all day in the bathroom and could barely care for my beautiful boys.

So, inpatient in the hospital with IV’s and TPN and biopsied came back positive from Crohn’s and UC but that’s almost unheard of. Extremely rare. But biopsies confirm both have been detected so both will be treated. And here comes the prednisone,aka to us Crohnie’s, as the devils tic tacs. But, of course it’s IV pred for me and I blow up like the stay puff marshmallow man. Here is my beginning of a lifelong battle. A battle that does not just affect me but my children and my family and everyone around me. My children learn compassion most don’t ever learn, strength beyond any measure, and a mother’s will to survive anything.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • BeautifullyBrokenLisaMo
    2 months ago

    Thank u for my fav poop outlet! of course I’m referring to IBD & this amazing team! Talking to other people who can empathize is a huge relief of stress,

  • ashleyf moderator
    2 months ago

    First, I’d like to thank you for sharing your story here with us. It can be very powerful for others to hear about others experience and hopefully feel a little less alone! Living with just one form of IBD is incredibly challenging, and here you are fighting two for almost 30 years- you are a true warrior! Those first couple of months before your diagnosis must have been frustrating and exhausting, especially with two toddlers. Your children are very lucky to have you as a mother, your love for them radiates through your words. We are glad to have you as a part of our community, and please never hesitate to continue to share more of your story with us. Best, Ashley (Team Member)

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