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A childhood of illness

My story starts the summer before my freshman year of high school. I ended up going to the first day and then being admitted to the hospital and never making it back that year. I ended up with an ileostomy and was never able to get a reversal. We tried 3 times and all three failed. Fast forward 25+ years to now. I have an ER visit about every couple of months due to the high out put..I’m grateful for my ostomy since it saved my life but being dehydrated all the time is frustrating…

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Comments

  • Julie Marie Palumbo moderator
    4 months ago

    That is so much to go through at such a young age! Thank you for sharing your story, and I am sorry you have been experiencing consistent symptoms that have not been resolved over the years.

    I hope you find a medical plan that works soon, and that you can stop the frequent ER visits!!

    –Julie (Team Member)

  • thedancingcrohnie moderator
    7 months ago

    Thank you for sharing your story with the community.

    I am so sorry you are dealing with these symptoms. I can certainly understand how frustrating it must feel to be dealing with dehydration all the time and high out-put.

    Keep taking things one day at a time. Pray/meditate to keep your mind and heart strong. They take a hit too with this disease.

    Also, I’ve heard many with stomas say that marshmallows help lower the amount of out-put. Perhaps that will help a bit?

    Always know you have a community here that cares. Don’t hesitate to reach out whenever if you ever want to talk.

    Wishing you the best in health.

    Always dancing,
    Elizabeth (team member)

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