Almost 30 years
I am now 72 years old and I was diagnosed with UC about 35 years ago. I was also diagnosed with PSC (Primary Sclerosing Cholangitis) a liver disease. I've dealt with the UC for about 20 years and I've had many anxiety-ridden trips to bathrooms. In 2006 I finally had a liver transplant. Thankfully, I recovered well and have gotten along very well with the new liver. However, the UC had gotten even worse.
I had many colonoscopies and a couple of years ago I was told the UC was in remission and "very quiet"! I was shocked because I was having accidents and many problems, so I asked the GI doctor why. He said, "Oh, well, that's your IBS."!! I was shocked again. No one had ever told me I had IBS. I've had accidents in stores, church, in the car, and even right here at home! I just couldn't get into the bathroom in time. Last year we were on a road trip and were stuck on a loooooong bridge. Of course I had to go and by the time we got across and into a gas station it was too late! So embarrassing! I can completely understand the stories I've read on here and never knew there were others with this problem!
Thank you for being there!
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