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Almost 30 years

I am now 72 years old and I was diagnosed with UC about 35 years ago. I was also diagnosed with PSC (Primary Sclerosing Cholangitis) a liver disease. I’ve dealt with the UC for about 20 years and I’ve had many anxiety-ridden trips to bathrooms. In 2006 I finally had a liver transplant. Thankfully, I recovered well and have gotten along very well with the new liver. However, the UC had gotten even worse.

I had many colonoscopies and a couple of years ago I was told the UC was in remission and “very quiet”! I was shocked because I was having accidents and many problems, so I asked the GI doctor why. He said, “Oh, well, that’s your IBS.”!! I was shocked again. No one had ever told me I had IBS. I’ve had accidents in stores, church, in the car, and even right here at home! I just couldn’t get into the bathroom in time. Last year we were on a road trip and were stuck on a loooooong bridge. Of course I had to go and by the time we got across and into a gas station it was too late! So embarrassing! I can completely understand the stories I’ve read on here and never knew there were others with this problem!

Thank you for being there!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    5 months ago

    So happy you don’t feel so alone, knowing that there are others out there like you can bring such comfort. I certainly have had my fair share of accidents. They are never ever fun and you never get used to it.

    Funny enough, I didn’t know I was diagnosed with IBS until I went back years later and read my diagnostic papers! I saw Crohn’s Disease and IBS. And I was like what?! My doctor told me nothing about the IBS.

    Anyways, remember that you aren’t alone! It’s nice having you as part of the community. I hope you are doing well these days.

    Always dancing,
    Elizabeth (team member)

  • crystal.harper moderator
    6 months ago

    Thank you for being part of our community! I’m glad you no longer feel alone with what you’re going through and we will be here whenever you need us! Please keep us updated on how you’re doing!

  • Pam.Kingsland moderator
    6 months ago

    Hi @grandmapeg! We’re so glad you’ve found our community. Thank YOU for being here and sharing with us. I know many people here can relate to your story!! Please come back and share anytime, we’re all here for you! Warmly, Pam (team member)

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