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Has anyone taken Budesonide?

I suffer with Crohn’s/ IBD . It has taken over my life. I can hardly leave my house and sometimes I can’t even make it to the bathroom. They have tried me on different medications but I’m allergic to so much now they want to try me on Budesonide. I am terrified to try it since the last medicine they tried me on, I ended me up in the hospital. So, I’m at the point that I don’t want to suffer with Crohn’s but I’m also scared of the medicine since I am allergic to so much. Has anyone taken Budesonide for their Crohn’s ??

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Comments

  • Connie L S author
    1 month ago

    Someone please help I have been on Budesonide for 17 days now and I am still suffering with running to the bathroom and severe cramping and yes I have called my GI doctor and he said keep taking the medicine. Not much help. Has anyone been on this medicine and still suffered with cramping have I not been on the medicine long enough for it to kick in ?

  • Julie Marie Palumbo moderator
    2 months ago

    Yes! I have a few times (once on Entocort and once on Uceris) for my Crohn’s and it was great. It’s a steroid, but unlike the dreaded Prednisone, it is localized to the area that is affected so you don’t get the nasty side effects.
    I am also allergic to Remicade and penicillin so my medication list is quite limited and I had no allergic reaction to Budesonide either time 🙂 Hope this helps!

    –Julie (Team Member)

  • Connie L S author
    2 months ago

    Thank you so much did you start out on 9mg ? I am on 3 mg for a week then go to 6 mg and then 9mg so far I am just experience being nausea and eating a lot . The doctor wants me to lose 30 pounds but at this rate it’s going to be really hard. I don’t wish crohn’s On anyone.

  • Connie L S author
    1 month ago

    Thank you so much hopefully I am on the way to recovery because I have suffered with Crohn’s disease for a long time and been on different medicines for it but was allergic to most of them . It’s not a whole lot of any medicines I can take even when I have a cold . Any information is greatly appreciated .

  • Mike S.
    2 months ago

    I just finished my third Budesonide taper due to a flare up. I must say that I much prefer it to Prednisone.

    Unlike Prednisone I’ve had very few side effects with Budesonide, other than a slight change in appetite. Oh, and nausea the very first time I was on it, but the doctor prescribed an anti-nausea (can’t remember the name of it) at the time which minimized that.

    Crohn’s disease is certainly not fun but you’re definitely in the right place for questions and support.

  • ShelbyComito moderator
    1 month ago

    Thanks so much for taking the time to share your experience and help out others here @silvermike!
    – Shelby, InflammatoryBowelDiesease.net Team Member

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