Butyrate was the answer
Thank you for letting me post to this forum. I wanted to share my story of a close family member who had UC for over 25 years and to see if anyone else has had success with butyrate? The family member had been on a range of treatments, including mega dose steroids but became unresponsive to these. They were prescribed self-injected biologic drugs (costing the NHS £10k/year) but these didn't work, and were about to be put on stronger IV infusions (costing £16k in the 1st year). They had tried a number of dietary and supplement protocols too over the years, with small degrees of success.
I did some research about butyrate and there's lots once you start looking, so I recommended they tried it. The effects were unexpected and astonishing. Virtually the same day they felt a positive impact and by day 2 had hardly any symptoms. Over the last 15 weeks, the benefits have been sustained and they can't remember their digestive function being this good (no urgency, frequency down from 8-11 times per day to 3 per day, normal formed stool). Has anyone else tried butyrate? The IBD clinic were most unhelpful and had no knowledge of it.
How open are you about being diagnosed with IBD?