About 1 Year with UC
I was diagnosed with UC a month or two before my 16th birthday. I’m now 18 and entirely unable to get control over my symptoms. I’ve gone through so many medications, and the only non steroidal one that even kind of worked was Remicade, which I have infusions of every 4 weeks. It’s worked for the most part, but I’ve had 2 or 3 MAJOR flare ups in the 10 months or so we’ve used it, and my symptoms always return around week 3, even though they’re not nearly as bad as during an actual flare up. I discovered this site because now I’m in another major flare up, and I had an infusion three days ago, so I should not still be experiencing symptoms at all, let alone some of the worst I’ve ever had. We contacted my doctor and we’ve been discussing hospitalization and maybe j pouch surgery. I’m terrified. I’m 18 years old and idk how to feel, Idk what to do, and I’m just scared. I’m getting a bunch of labs done tomorrow and then a doc appt the day after that, so I guess we’ll see what the next step for me is. I would really appreciate other people with UC talking to me about j pouch surgery, especially those that have had one, as I’m starting to seriously consider it. I just want this disease out of my life. I just want it removed and I’m sure you can all understand that.
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