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Crohn’s

I was 71 years old before I got Crohn’s disease. First I had a colostomy and then a year later they had to close that and do a ileostomy. Tomorrow I will be 76. This has been a huge change in my life. I live in a small town and for over a year I was seeing a doctor here in my home town, all they did was keep changing my medications and I just kept getting sicker. Finally I had had it with the doctors here and went to a larger city to a GI doctor. They had me on prednisone for a while and I wasn’t getting any better. Things got much worse and by the time I had to have surgery my colon had so much damage they had to remove it along with my rectum and anus and do the ileostomy.

I still get very tired at times. I take shots every other week to help keep the Crohn’s in remission.

Just would like to talk to other people with Crohn’s. Like I said I am in a small down and really people can’t relate what I go through. Even my husband doesn’t understand why I feel like I do at times.

I also have a daughter with MS and I have been her care giver for 14 years now, I don’t get much help from my husband when it comes to helping with her.

Hope I hear from some of you and see how you deal with your illness.

Thank you,
Marilyn

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • thedancingcrohnie moderator
    1 year ago

    Hi Marilyn,

    Thank you for sharing your story with us.

    Crohn’s can be so hard, I too was diagnosed with it. I can’t imagine having CD and being the caregiver to someone else, for that alone, you are such a warrior. Your strength is inspiring.

    Know that you can always reach out to the community here. You can even private message me if you ever want to talk, I know what it is like to feel alone with IBD. We are here to support you.

    Always dancing,
    Elizabeth (team member)

  • SusanHU
    2 years ago

    Hi @jonsey – thank you for taking the time to share. It sounds like you’ve been through quite a lot and we know it can be difficult to care for someone else while also trying to care for yourself.

    We’re so glad you’ve found our site and hope we can be of some help! I also wanted to share this article with you with some tips from the community: https://inflammatoryboweldisease.net/spotlight/tips-ibd-community/

    I hope it helps but please keep us posted!

    – Susan (InflammatoryBowelDisease.net Team Member)

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