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Living with Crohn’s disease and erythema nodosum

I do not have the story to encourage.
But if you listen to my story, then thank God,
because he has given you birth in the first world.
If you want, you can get better treatment, service,
co-operation and specialist doctors.
And here I’m alone.
In December 2012, I was diagnosed with this crohn’s disease.
Then, in 2014, a severely painful disease was associated with crohn’s diseases named “erythema nodosum“.
Since then, my only drug is “steroid” With Mesacol.
And you know, I have facing more problems for the side effects of
steroids.
Surprisingly, in my country, I am the only sufferer of this disease.
So there is no specialist doctor here.
You will be more surprised knowing that
I have to go to another country “India” to bring a medicine “Imuran“.
In my country there is no specialist for IBD.
Repeatedly I am getting admitted to the hospital.

When my doctor said, you go to America for better treatment,
to live a little better, cause we are helpless to help you.
Believe me, I’ve tried several times to get a visa but did not get the visa.
I have tried all kinds of things to live a little painless.
All my resources for treatment are over.
Now I’m just waiting for the ultimate wish of death.
I think death can end my pain.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • SusanHU
    2 years ago

    Hi Farhana,

    Thank you for sharing your story with us and being so open about your experience. We really feel for your and want you to know that you are not alone in your struggle. Even though we are far physically, this community is here for you.

    I also wanted to share a link to the chat feature over the suicide prevention hotline which you can hopefully access where you are. We encourage you to keep talking about this and reaching out for emotional support even if you’re not finding the medical support you want and need. http://chat.suicidepreventionlifeline.org/gethelp/lifelinechat.aspx

    I also wanted to share a couple of articles from our advocates that touch upon some of these topics and you might find beneficial:

    https://inflammatoryboweldisease.net/living/ibd-and-mental-health-depression/
    https://inflammatoryboweldisease.net/living/unhealthy-coping-mechanisms/

    Again, please know that we are here for you and we’re thinking of you. I hope that you are able to find some help and resources as well – please keep us posted and thank you again for sharing. – Susan (InflammatoryBowelDisease.net Team Member)

  • Farhana author
    2 years ago

    Thank you for your cordial support.

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