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My Crohn’s

I am new to this. I am not very open about my condition only with my partner and family so this is… a big (ish) step for me. I was diagnosed with UC when I was 3 years old. Very young considering a majority who have a bowel disease are in their late 30’s. At first, things were fine for me growing up. Being able to be the fastest runner in my class, participating in physical activities and being, well, a “normal” child. As I grew, I also grew an abscess for the first time. This was strange to my doctor as this wasn’t interlinked with UC. So my symptoms had changed over time. I am now diagnosed with Crohn’s Disease. My body seems to be very greedy and likes the best of both worlds I guess. This was about 4/5 years ago. I am currently recovering from having a fistula treated. It doesn’t help my levels of stress considering I am newly employed and want to make the best impressions possible but as they say, “health comes first” and all that. This may be true, but it’s crazy how our world, how to continue with our lives comfortably revolves around money. I try to keep a positive mind set, but the thing that always appears in our minds are “why me?”. I can say this more than most, that question would never be able to be answered. No matter how much iI do want it to. Not even being able to discuss it with others because it withdraws me. Anyway. I have much more to my story. MUCH more may I re-phrase. If you have any questions, or simply want to communicate with me on this, my ears (well eyes) are open. 🙂

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  • RebeccaRose
    2 years ago

    I am not open about my condition either. A small part of me wants to be, but I’m not sure how. I’m afraid if I tell more people, they will reject me and say I am making it up. I had never encountered that until I had a new symptom come up this past year. The feeling I got when a good friend told me “it’s probably just stress” was horrible. So I made an account on this website because it is hard being surrounded by people who do not understand as much as you want them to. It is good to know there are other people experiencing the same things I am and asking “why me?” too.

  • SusanHU
    2 years ago

    Hi roniixx,

    Thank you for sharing your story – and we hope you will continue sharing all of the other stories you have! =)

    You are not alone in your symptoms or your feelings. We are here for you!

    Susan ( Team Member)

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