Flare

By myholly18

July 6, 2020

Hi I think I’m having a flare, I have had ulcerative colitis for fifty years and am recovering from bowel cancer, stage 3. Surgery left hemicolectomy and chemo. My UC is worse than ever. I’m sure I need extra meds now. Any suggestions, please? x

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Sahara Fleetwood-Beresford Moderator
July 9, 2020
Hi <inline-mention user-id="2266402" username="myholly18"/> . It sounds like you have been through quite the time of it recently! All I can suggest is getting in touch with your IBD team, so that they can arrange the necessary tests and then take action. - Sahara (team member)
1. myholly18
 July 9, 2020
 Hi I have been in touch with my nurses and consultant, Pulse dosage of vancomycin for the next 6 wks Then being considered for FMT so hoping that will be a end to it x
2. Sahara Fleetwood-Beresford Moderator
 July 14, 2020
 My fingers will remain crossed for you <inline-mention user-id="2266402" username="myholly18"/> ! – Sahara (team member)
myholly18
July 9, 2020
Hi Sarah I got in touch with my specialist nurses, Vancomycin, and a pulse dosage. Hopefully I’m being considered for FMT . X
myholly18
July 14, 2020
Sara Thank you, for crossing your fingers. Will let you know if it happens, have a feeling COVID will have to improve before it’s done , which is a pain !x
1. Amanda Osowski Moderator
 July 15, 2020
 Hi <inline-mention user-id="2266402" username="myholly18"/> , I'm so sorry that COVID is impacting your being considered for FMT. I have previously struggled with re-occuring c-diff and have FMT in the back of my mind. Thinking of you, sending you support! Warmly, Amanda
myholly18
July 16, 2020
Hi Amanda Thank you for your comment. Hopefully my consultant will get it sorted. I know I can’t keep going on vancomycin or fidixomycon for me it’s just a short term fix. I feel FMT is my last hope! I can’t say I’m looking forward to it, but I will do anything so I can get back to a reasonable normal life. The chemo upset my flora so I now swing between a u/c flare and c diff. So fingers x will keep you posted. Thank you x

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