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“Have fun…and take pictures”

I am so many things to so many people. Wife, mommy, daughter, friend but I never thought I’d say charity case. I was diagnosed with UC in 2014 after three months of diarrhea, 20 pounds lost, and pure exhaustion. I went into remission pretty quickly after my diagnosis and then got pregnant with my second child–so goodbye Apriso, and prednisone… I don’t need you and I also probably don’t have UC.

We welcomed our daughter in 2015 and I was okay until she turned two months old… and I went from kind of healthy to deathly ill overnight. My whole digestive system shut down, I was pretty much unconscious in bed for over a week, I managed to lose all my baby weight and then some and I was in debilitating pain. My symptoms came back and it knocked me on my ass so prednisone, protonix, an antibiotic and pentasa were back! I eventually pulled out of the flare and spent my time loving life, working out, and focusing on anything but this stupid diagnosis which I still doubted I had.

I had maybe three flares from November 2015-October 2016 when we found out we were expecting our third! Goodbye pentasa, prednisone, and protonix. I definitely don’t need you and I highly doubt I have UC.

Here I am, sitting here with my two month old… after just getting out of the hospital for one of the worst flares I’ve ever had. I managed to lose most of my baby weight, but prednisone doesn’t work now. Lialda is next on the docket, I have a hiatal hernia and needed my esophagus stretched and I have an official Crohn’s disease diagnosis. Hello prednisone, lialda, protonix, depression, loss of hope, etc. In the past week I have been on morphine for severe and debilitating pain, Percocet, and high doses of prednisone. I’ve had an ekg, two chest x rays, colonoscopy, and endoscopy. So much information has been regurgitated and I’m still trying to make sense of it all… but I think I’m more positive because I know and even though it super sucks, I know.

Here’s to the long journey to health and happiness.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • SusanHU
    2 years ago

    Hi SaraArnold,

    Thank you for sharing your story – we really appreciate it! Please know that you are not alone. A number of our community members have dealt with many of the same issues and are here for you.

    Please keep us posted and let us know if we can help in any way!

    – Susan (InflammatoryBowelDisease.net Team Member)

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