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IBD or not IBD, that is the question

I’m currently in the hospital (again). I fainted on the toilet. I came to the ER with pain and bloody diarrhea. They did a CT and said I have colitis. My stool Lactoferrin was positive. I don’t have a fever, nor are any of the bacterial tests coming back positive.

It sounds like Crohn’s, but…

I just had a colonoscopy that was negative (except for lymphocytes). I’ve had dozens in my life. Though they have found erythema and jejunal ulcers, they said that I don’t have Crohn’s. I’ve been tested for Celiac and even pancreatic enzyme deficiency.
I’m disabled. I’ve been battling chronic diarrhea for decades. Now I don’t know what to think. If it’s not an infection, and I don’t have IBD, what is the “colitis”?

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Comments

  • Julie Marie Palumbo moderator
    5 months ago

    Thank you for your message. I am sorry you are sick, and experiencing such rough symptoms.
    This article below explains what Indeterminate Colitis, which may answer your questions.

    You can always talk to your doctor about how Colitis differs from Ulcerative Colitis to get a better understanding of your diagnosis. Hope this helps!

    https://inflammatoryboweldisease.net/types-of-ibd/indeterminate-colitis/

    –Julie (Team Member)

  • Brooke Abbott moderator
    5 months ago

    Hi @musikate,

    Did they say, Colitis or ulcerative colitis. Because ulcerative colitis is IBD. In a way, it’s a sister disease to Crohn’s Disease. It falls under the umbrella of Inflammatory Bowel Disease. What is sounds like is, it could be ulcerative colitis. This article may help you: https://inflammatoryboweldisease.net/types-of-ibd/ulcerative-colitis/

    -Brooke
    (inflammatoryboweldisease.net team member)

  • thedancingcrohnie moderator
    5 months ago

    I am not a doctor, but perhaps it could be a severe bacteria or yeast overgrowth causing the colitis? I was diagnosed with Crohns in 2011 but after years of not improving and not seeing any results, I reached out to a Naturopathic Medical Doctor. He tested me for bacteria and yeast overgrowth. Turned out I had it in my intestines. He gave me supplements to kill them off and I have been doing so well ever since. Maybe try to contact a NMD in your area?

    I hope this helps some and you find relief soon.

    Always dancing,
    Elizabeth (team member)

  • Julie Marie Palumbo moderator
    5 months ago

    Thank you for sharing, Musikate! This article may help provide more information for you about colitis. You have definitely come to the right place with this question.
    https://inflammatoryboweldisease.net/types-of-ibd/ulcerative-colitis/

    –Julie (Team Member)

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