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IBD or not IBD, that is the question

I’m currently in the hospital (again). I fainted on the toilet. I came to the ER with pain and bloody diarrhea. They did a CT and said I have colitis. My stool Lactoferrin was positive. I don’t have a fever, nor are any of the bacterial tests coming back positive.

It sounds like Crohn’s, but…

I just had a colonoscopy that was negative (except for lymphocytes). I’ve had dozens in my life. Though they have found erythema and jejunal ulcers, they said that I don’t have Crohn’s. I’ve been tested for Celiac and even pancreatic enzyme deficiency.
I’m disabled. I’ve been battling chronic diarrhea for decades. Now I don’t know what to think. If it’s not an infection, and I don’t have IBD, what is the “colitis”?

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Comments

  • Brooke Abbott moderator
    3 weeks ago

    Hi @musikate,

    Did they say, Colitis or ulcerative colitis. Because ulcerative colitis is IBD. In a way, it’s a sister disease to Crohn’s Disease. It falls under the umbrella of Inflammatory Bowel Disease. What is sounds like is, it could be ulcerative colitis. This article may help you: https://inflammatoryboweldisease.net/types-of-ibd/ulcerative-colitis/

    -Brooke
    (inflammatoryboweldisease.net team member)

  • thedancingcrohnie moderator
    3 weeks ago

    I am not a doctor, but perhaps it could be a severe bacteria or yeast overgrowth causing the colitis? I was diagnosed with Crohns in 2011 but after years of not improving and not seeing any results, I reached out to a Naturopathic Medical Doctor. He tested me for bacteria and yeast overgrowth. Turned out I had it in my intestines. He gave me supplements to kill them off and I have been doing so well ever since. Maybe try to contact a NMD in your area?

    I hope this helps some and you find relief soon.

    Always dancing,
    Elizabeth (team member)

  • Julie Marie Palumbo moderator
    3 weeks ago

    Thank you for sharing, Musikate! This article may help provide more information for you about colitis. You have definitely come to the right place with this question.
    https://inflammatoryboweldisease.net/types-of-ibd/ulcerative-colitis/

    –Julie (Team Member)

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