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Long Road

I went years un-diagnosed, many doctors telling me it was in my head. I was persistent enough to keep asking questions and find a doctor that would listen. I was finally diagnosed with Crohn’s disease in 2013. Had my first surgery in 2017. It is a tough thing to have but tougher when people, especially doctors, do not listen.

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Comments

  • Pprice363
    7 months ago

    I have colitis for 15 years I know where you are coming from first time I found out I had colitis there was blood in the stool so I went to the doctor they did a colon screening they said my colon was inflamed they put me on humaria that didn’t work my insurance won’t pay for what I need I don’t know what to do colitis is the worst thing there is .I am thankful I found this website at least I know I am not alone

  • thedancingcrohnie moderator
    7 months ago

    Thank you for sharing your story. So sorry you had to go through the years of being un-diagnosed because doctors were unwilling to listen.

    How have you been feeling since your surgery? I hope you are finding relief these days.

    Always dancing,
    Elizabeth (team member)

  • ASouders01 author
    7 months ago

    I am still working on finding something that will work, but better than I was before the surgery. Thank You

  • thedancingcrohnie moderator
    7 months ago

    Of course! Here to offer support.

    Have you tried excluding dairy, grains and processed sugars until you feel better? I find when I do this consistently my symptoms practically disappear.

    I hope this helps!

    Always dancing,
    Elizabeth (team member)

  • Pam.Kingsland moderator
    7 months ago

    Thanks for sharing, @asouders01. You’re right… IBD is such a misunderstood disease and so many just don’t understand what you are going through. I feel your frustration about the ignorant remarks, “it’s all in your head”. We understand and are here for you!! – Pam (team member)

  • ASouders01 author
    7 months ago

    Thank You

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