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Long and Weary Road

My name is Vanessa. I was diagnosed with UC in 1990 after visiting my deployed husband in Singapore. 10 days after returning I was bleeding rectally and in the fetal position on the couch in severe pain. Then I found out I was pregnant. Within weeks I was on my first of 2…6 week hospital stays. Ate nothing for 6 weeks. .only ice chips. My husband came back to this and his own PTSD..needless to say we were divorced by the time my son was 4. I had a high risk pregnancy, and we both almost died. Was in and out of hospitals, got a Hickman catheter in my chest which ended up with a staph infection, and many emergency visits. Luckily my son was born perfect!

Had an ileostomy and most of my colon taken out and months later had to have my left hip replaced because the prednisone wrecked it. I’ve had several replacements and dislocations since. My UC went into remission for almost 22 years and then the week before thanksgiving 2012 i was in the hospital with a terrible infection which kept me in there 2 weeks and was diagnosed with Crohn’s. My grown son is now an EMT because of what he has seen me go through. He wants to help others.

For the last 4 years I’ve have constant flare ups and I’m tired of this. All I can say is I have to keep positive and enjoy my non flare days. Thank god I have a great family and friends and especially my wonderful son who is my rock.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    9 months ago

    You have definitely been through so much and I find it so inspiring that regardless of your trials, you choose to remain positive and enjoy the days you can. That takes immense strength!

    I hope you are feeling better these days and have found relief from your flares. Thinking of you!

    Always dancing,
    Elizabeth (team member)

  • Dana
    4 years ago

    Hi magsmom65!

    Thank you so much for sharing your story with us and becoming a member of our community! It sounds like you have been through a lot and it has not been easy for you. I am amazed at your strength and think that you are a wonderful person! You are very lucky to have good support from family, friends, and your son! I hope you find a long time in remission soon and stay positive always!

    We are so glad to have you here and hope you stay in touch!

    Keep smiling!
    Dana ( Team)

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