Manageable chaos
Hello all. I just wanted to share my story with you. Hopefully some can relate. Hopefully others will get hope from it.
I was diagnosed when I was about 12 or 13 years old. I went through a looong series of horrible tests and procedures. I went through multiple doctors. Things in high school were rough. Having to explain to all my teachers that I can't hold it if I need to go to the bathroom. Having to deal with students thinking I got special treatment.
My sophomore year I got very sick. I was in and out of the hospital. I ended up losing 100 lbs in the span of 6 months. After that I was frail, just going through the motions of high school. After graduation I had a resection done on my colon. They took out almost 15 inches. Surgery went well, everything was fine, but it didn't cure anything.
I struggled through 5 years of college. All the while having to explain to my teachers and close friends what I was going through and hoping they would understand. I made it through college, as well as 6 internships, and graduated with a degree in engineering with a full time job lined up. I found that, if possible, laughing about the disease does help. My closest friends kind of understand what I go through and they make jokes now that I am comfortable with it. It helps. It just makes the pain and the suffering seem less.
Now, I have graduated and been working as an engineer for 2 years. I recently went to Japan for work. Although it was scary at times and I struggled, I am so blessed to have been able to have that experience. I am going back next week.
Now, for my question for you guys:
My Crohn's is better than before, but I'm not by any means in remission. My biggest issue is the urgency. When I get that pain in my intestines, I need to go...now, and I've found that a LOT of this pain comes from stress or worry. Is there anything that helps anyone here? Anything to calm down, or relax?
P.s. I am currently on entivyo, which I believe has helped. But I am also still taking a small dose of Prednisone. I can't seem to get off of it without having symptoms. Any advice there would be great. Thanks for reading.
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