Crohn's for 37 Years
Last updated: August 2023
I was finally diagnosed in 1986 after eight months in the hospital, and I was down to 82 lbs. I was told only two of three tests came back positive for Crohn's, and they were not convinced. The doctor told me I wasn't the type to have Crohn's, and I'm still trying to figure out what that meant.
Finding ways to manage Crohn's
Luckily, I had an Internal Medicine doctor, and after seeing me for the first time he started me on Asacol. At that time there was only one medication for Crohn's in Canada. I was the second person to use it. Within three weeks I started to gain weight, ounce by ounce.
It took a long time to come back from those eight months, but I did. Diet was super important for me, and a milk allergy developed during those months too. I lost count over the years of how many surgeries I had as well as colonoscopies, but who wants to remember them?
Summer is super hard for me every year since being diagnosed, I have no idea why though. The extreme heat we have had the last few years has made it worse.
That's my story, condensed. Thanks for reading it.
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