My life.....

By rebecca71

2 min read

Well hi my name is Bec , I was diagnosed in March 2008 after many years in and out of hospitals with what was thought to be appendix, but no finally I go one better to find I have now a disease I know nothing about. Well to cut a long story short I have had many hospital stays to this day and 1 resection in March 2010, pushed from pillar to post with appointments complications ranging from obstruction, to c- diff, mobility issues due to joints sizing, and yep flairs, not to mention an anaphylaxis attack due to the big mix of drugs they had me on. I have also had melanoma due to being weaken immune system and several scc as well.

So all round I've had the worst and am now trying to get on my feet again. But wait now to this day I am at a stand still with this on going tail bone and left side weakness not to mention that for 3 weeks of the month what seems like extremely painful pms symptoms. Cramping pain so intense I could scream, go to the ER here in Australia to find I'm getting treated like a drug addict, and always stating I need social workers, and pain management in which I have been and have on going counseling and been through pain management now yearly. I need any advice I can get as my quality of life is at an all time low, now that my lady bits are buggering up too.

I am on salofalk, Zoloft, nexium, and lipidil, not to mention Panadine forte daily and endone at night for sleep in which I get little, predisalone on and off as they only allow short birsts of this due to my osteoarthritis. Never have I felt so low with this disease and the medical profession here state oh your not a text book case which sends me crazy. I have lost family and friends due to my unreliable disease, (there lack of understanding as I come from a family of oh get over it). I have support aswell from crohns here in Melbourne, but I still feel isolated in this area. Thanks for adding me and I hope we all can find some sort of peace and normal in this crazy mixed up and complicated disease. Regards bec

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dana Member
Hi Bec! You sound like a very strong person that has been through a lot and we are so happy to have you here as a part of our community so you can hopefully find some extra support! We hope you find our site useful to find more information, connect with others, and feel free to update us on how you are doing as time goes on! We are here for you and hope things get better! Stay strong and keep smiling! Dana (InflammatoryBowelDisease.net Team)
rebecca71 Member
Gday Dana, and all here , Just a quick up date they have also now diagnosed As( Ankylosing spontlilis) which is a relief , have had a spinal nerve block ,with great success. ( yay no more tail bone pain for now) But as for lady issues my period has stopped and blotted like I'm over 9 months pregnant, crohns is under control at the moment so I have been now referred to the leading woman's hospital in Melbourne for now more tests. Yep more of a twisted mess all to put ip with. But emotionally I'm slowly getting better and I am hopeful there will be a light at the end of this battle. Thanks for you kind words of encouragement and I appreciate being here where I at least feel semi normal and not a crazy nut in constant pain. Regards Bec ( your Aussie mate forever )
thedancingcrohnie Moderator & Contributor
Hi Bec, I am so sorry you have had such a rough journey. I can't imagine how painful it must be to have your family and friends be unsupportive. My heart goes out to you. I hope you are doing better these days. Please know that you have a community here for you always. We care. We understand. Lean on us whenever. Wishing you the best in health. Always dancing, Elizabeth (team member)
Matt Nagin Moderator
Hi Bec, Sorry for all you are going through. It can be a really tough condition, particularly when you have a non-supportive family. I hope you see better days soon and get the treatment you need. Take Care, Matt (Team Member)