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My Life with Ulcerative Colitis

I didn’t know what was going on when I was first hospitalized. I was only 5 years old when I started feeling ill. I had different diagnoses and treatments during an entire year (including an exploratory surgery) and finally, after several months, I finally had a specific diagnosis: I was told I had Ulcerative colitis. That was the worst flare-up of my life (sleepless nights vomiting, running to the bathroom, anemic, underweight) but with medications, I survived it.

Years passed and luckily, I had minor flare-ups and for many years I was on remission, life was good. Sometimes I even forgot I had a lifelong illness. I didn’t worry about a flare striking again, until a few years ago when I started having symptoms like brain fog, eye sore, skin rashes, fatigue, anxiety, and joint pain.

This new part of UC was something I never expected. Twenty years ago, when I was diagnosed, nobody told me IBD could impact in so many ways. I was full of doubt and fear, which made everything worse. I felt depressed, lonely and guilty because all the people around me think that it’s “just a bathroom disease” and most of my social life was gone, I stopped going to college, quitted my job and had mayor arguments with my family. Convincing everyone that my symptoms were real was a colossal battle.
Months passed but now I’m living my life again, I’m in love with a wonderful man, I’m finishing my college education, my family now is more understanding and I’m trying to start my own business.
I’ve found a way to conquer all the challenges that have been presented in my life and every day that passes, I learn something new about IBD and even though I’m still struggling with this new stage of my life, I’m determined to not let fear take over me again, to keep fighting, to help others understand and live with IBD and finally and most important: to be happy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • thedancingcrohnie moderator
    8 months ago

    Thank you for being so transparent. I can so relate to your story. I was diagnosed with Crohn’s Disease and it is definitely a hard pill to swallow. The symptoms are never easy and of course dealing with family and friends that just don’t understand can be so stressful.

    Your positive outlook is inspiring and I love that you are pushing forward and choosing to not let your diagnosis define you. Rock on warrior!

    Always dancing,
    Elizabeth (team member)

  • SusanHU
    11 months ago

    Thank you so much for sharing your story! We’re so glad to hear that you’re doing well and are happy – and glad to have you as part of our community! Please let us know how we can help and keep us posted on your journey! – Susan (InflammatoryBowelDisease.net Team Member)

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