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My life with crohns

Hi my name is Sarah I got diagnosed with crohns when I was 18 and just two days after I got diagnosed I turned 19 when I got diagnosed my daughter had only been 3 months old I was in and out of the hospital because my crohns wasn’t under control at that point I look back and think is there something that I could have done to prevent it? I started to lose all this weight I was throwing up after almost every meal and running to the bathroom I was so sick of being sick and dealing with the pain that I was like God please take me I can’t deal with this for the rest of my life in June of 2015 I went into the hospital for a flare up the day I got released I went back in 2 hours later for really bad pains it felt like I was having a heart attack I was having trouble breathing so my fiancé rushed me to the emergency room and the doctor that had saw me during the week while I was in the hospital said to me I think we need to do surgery so I prepared myself to go in I went in for surgery around 9-9:30 that night and I woke up and it was Tuesday my surgery was Sunday I found out when I woke up that I was in the icu and that I had two surgerys in less then 24 hours I was so swollen that they couldn’t close me up I found out that I had a hole in my intestine and that they removed it I’m so thankful for God that he helped me but now I had an even bigger battle I had to heal and recover while being a mom to my 2 year old daughter I was crying when I came home because she didn’t come up to me she didn’t know me because I had been gone for over a week I couldn’t even pick her up because I could only lift 15 pounds and it was summer time while everyone was swimming I was at home resting and healing and I also had to learn to cope with now I have a huge scar on my belly that is huge and I wasn’t uset to it if you want to know the rest feel free to message me

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  • thedancingcrohnie moderator
    1 year ago

    Goodness. You have been through a lot. Thank you for sharing your story, as I know others who read this will relate and not feel so alone.

    I can’t imagine going through all you went through, on top of having a little one. That is hard, but you pressed on and made it through.

    I hope you are doing well these days. Wishing you the absolute best in health, always. Feel free to keep us updated on how things are–you have a community here thinking of you.

    Always dancing,
    Elizabeth (team member)

  • 4 years ago

    Hi. My story is similar in a lot of ways. I felt such love for you reading your story. I too was diagnosed at 18. Had a lot of hospital stays and a lot of pain and suffering as it took a long time to even get it somewhat in control. I too had surgery when my child was only two and it was so hard. Major surgery in your stomach area is one of the hardest to recover from especially when you have a little one that just can’t understand. The surgery helped and was in remission for a couple years and then again during my second pregnancy. Since then it’s been flare ups and dealing with the daily crohns stuff. Just recently I’m back in a bad flare up and the Crohns has moved down so I basically have it throughout my whole body at this point. Am dealing with a fistula for the first time and it’s been so hard. Had surgery for that but it couldn’t be fixed as its too deep so I have a drain until it can heal for the actual surgery and will hopefully be starting on remicade soon as that’s the last resort and the one med that actually helps with the major inflammation going on and seems to help aid the healing of fistulas. I would love to stay in touch and learn more of your fight. We all need to stick together and help one another through this fight. Take care and I hope you are feeling well today.

  • Dana
    4 years ago

    Hi raracookie!

    Welcome to our community! I am so glad to hear that you are doing well and have remained a strong person through everything! Please feel free to come back at any time and update us on how you are doing, connect with others, or browse around whatever else we have to offer! Thank you for sharing!

    -Dana ( Team)

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