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My name is Andrew T. and I was recently diagnosed with Indeterminate Colitis

My name is Andrew and I’m a teen male living in Austin, Texas. In mid Sept 2017, I had just started a 2 week long school break and on Monday morning I woke up with very bad diarrhea and stomach cramping. This was scary since I had never even had diarrhea before and I didn’t know what was wrong. I spent the rest of the week on the toilet or asleep in bed because I rarely had the energy to get up and do anything.

On Friday, I went to turn in blood and stool tests but they wouldn’t admit me into the hospital yet because apparently it wasn’t an emergency. I started taking Mesalamine but by the next Monday my symptoms had gotten far worse and I was starting to lose a lot of blood. My mom ran me to the ER late at night and I was hospitalized due to blood loss and dehydration. They got me on steroids, IV fluids, and supplements of iron and other vitamins.

After a miserable 4 days of sleepless nights, vomiting up stomach acid, MRI testing, and spending hours on the toilet bleeding, my symptoms started to improve. I got a final blood test to check for tuberculosis and they sent me home Friday after lunch because I had gotten up and walking again. My dietician recommended the infamous SCD diet and I haven’t eaten any junk food in since then. Even though I can’t have sugary drinks or fried foods, I am thankful that I have been symptom free for a month and a half. I can now say that I have been through hell and back and that nothing is going to slow me down.

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  • Brooke Abbott moderator
    2 years ago

    Hi Andrew!
    Thank you so much for being brave enough to share your story. It’s not always easy, and it took me a long time to share. I’m so happy that your symptoms are currently being managed and you seem to be in some form of remission. When I was first dx w/ UC , this pretty much was how it worked for me.

    My only advice would be to not be complacent in your disease. Continue to actively engage your GI team. And if you do flare up again do not become frustrated or assume that you have done something wrong. It’s the disease. It isn’t always so easy to control and it may come back when you least expect it. Just continue to be progressive in your treatment plans and remain communicative with your doctors. Happy Holidays!
    ( Team Member)

  • SusanHU
    2 years ago

    Hi @Cent0rea88 – thank you so much for sharing your story! I’m so glad to hear that the SCD diet has been helpful for you. Many of our community members have found some success managing symptoms through diet but everyone is different and it’s encouraging to hear that you’re doing well.

    Please keep us posted on your journey!

    Susan ( Team Member)

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