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My story, my hell

I was diagnosed with Crohn’s back in 2001. I was rushed to hospital with severe abdominal pain. Test after test were done and colonoscopy. The conclusion… Crohn’s Disease. I worked in the medical field for 23 years prior to this and I was shocked, but relieved. Before my dx I always went to the doctor complaining always of severe abdominal pain and sore joints. I was in the hospital for 10 days. Over the years I feel it’s getting worse as I get older. I’m 49 years old and find it harder to recover from a bad flare. I’m going through some issues now of just really bad pain.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    9 months ago

    I am so sorry you are dealing with this and I hope you are doing much better these days. Know you aren’t alone and you can always count on this community to support you. We get it.

    Wishing you the best, always.

    Always dancing,
    Elizabeth (team member)

  • Having Faith
    2 years ago

    SusanHU, I am so sorry about what you are going through. You are truly not alone, as my symptoms are very similar to yours. I am also the same age. Sometimes Crohn’s can feel like your in hell. But some days for me aren’t so bad. I live for these days. A day with minimal pain is like gold to me. When I start to flare I feel like I’m falling down a dark hole. I also suffer from depression and when it’s the worst I lose my sense of taste and smell. I am struggling with that now. Every thing tastes “off”. What gets me through these times is knowing I will have good days again. I wish you the very best. You are definitely not alone in how you feel. Take care and God bless.

  • SusanHU
    2 years ago

    Thank you for sharing Gaynor Sword. We’re sorry to hear that you’ve struggled to diagnosis and that you’ve dealt with so many issues. You are not alone in dealing with pain and joint issues – we hear that a lot. Please keep us looped in on your journey and know that we are here for you! – Susan ( Team Member)

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