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Need advice

Hello, I got Crohns and had 5 surgeries! got 40 percent cut out of my small bowels I’ve lost 40 pounds over 9 months lots of going to bathroom. I was on prednisone and it made my adrenal gland stop working they took me off of it. I take opium tincture 4 times a day and Imodium AD four times a day and Bentyl 10mg 4 times a day. I also do entyvio every 8 weeks now. I really don’t have a appetite anymore. These past 9 months food just doesn’t taste good. I drink ensure drinks. The only medication that work is prednisone but the doctor will not put me on it again. I have begged. What does anybody else take to slow down there bathroom?

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Comments

  • Brooke Abbott moderator
    1 year ago

    Hi DonnaMichele,

    Have they tried other treatment options? It sounds like maybe entyvio is not working for you. I believe there are other therapies like Humira, Remicade, Stelara & biosimilars that are all approved for Crohn’s Disease.

    I drink a supplement called, ProNourish. It’s a little healthier than Ensure. But you may have to do a supplemental drink that is non dairy. The dairy in Ensure can be aggravating your system. You can also try the pureed food pouches that are fruit and veggie mix. I found that those go down pretty easy out of the pouch, frozen, in a shake or mixed in with another bland food.

    Hope you are feeling better soon! Keep us posted!

    -Brooke
    (InflammatoryBowelDisease.net Team Member)

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