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I became an adult, 3 months later, Crohns !

I was in the prime of my life ! On my own at 18, & renting my first apt. Started up my own business at 19 … Guys ‘n’ Gals hair and skin care. 3 months later I had planned a trip to Canada for a week for advanced hair styling course, & it began !! In a hotel … All night long, no sleep bc I was going to the bthrm every 10 min. I couldn’t stand up to work in classes every day or I’d have to go !! What a disaster! Went home to the USA hoping it was the water in Canada … Nope! Here I was a brand new biz & I’m deathly ill !! No sleep but I went to work every day bc this was my dream .. I couldn’t give up. I had to find out what was wrong?!

I started going to Dr’s, 12 to be exact in 2 1/2 yrs ! They all tested, they all said nothing I can find it must be yer 19 & running your biz is doing this ! It is my therapy I said, not what’s causing this ! One told me to take a vacation & watch yer symptoms go away ! They got worse! I was 76lbs & so weak but I went to work, & kept hoping 1 Dr will know so I kept putting myself through more agonizing tests, & prayed to God bc he knew something was there too ! Are you ready ? One night I just couldn’t take the pain anymore, it was Soooo Baaad ! I went to the ER & in front of the Dr & nurses, I puked poop out of my mouth !! Tasted it for a month too ! The Dr told me … It isn’t your biz, it’s something more serious, you need to see your Boston Dr & figure it out. I went to my Dr at Lahey clinic who told me it was my nerves, & biz, with the most recent episode. He got together with another Dr & said, we think it might be Crohn’s disease, & we’re going to put u on Prednisone. I asked the side effects, & he handed me a book it seemed of all the side effects, none impressed me but rather scared me! He said if it works, we can assume it’s Crohn’s. I said .. No ! There has to be another way! He said we can operate, & do an exploratory. Then we should know for sure I said, & he said yes, most likely.

They had to build me up for 5 days in the hospital with supplemental feedings since I was only 76lbs. They found it alright, 5 areas! They decided since there was so much it’d be best to treat it, not remove it fear of recurring & at such a young age it’ll set me up for a possible bad future. Well steroids never worked, they made me go 11yrs sick every day. I had constant obstructions in & out of the hospital Every 4-6wks until my 1st surgery to remove it all … Oh, bc they thought I had developed sml bowel cancer but, it was just the worst case of Crohn’s the surgeon ever saw. I went 2yrs & it was back. I’ve never responded to any treatment. I’ve had 7 resections, 1perforated bowel surgery, the pill camera got stuck, & had to have surgery to remove it. I have had AVN in both hips & knees from steroids. I’ve been living with CD 41yrs now. I’ve had 30 surgeries most related to the Crohns, & AVN, & I now live with short bowel syndrome also. Not an easy road but I’m still fighting !!

Currently I’m 92lbs live in constant pain, I see Drs 3-4 days a week. I have chronic anemia from GI bleeding, & active disease in both Lg & Sml intestines .. even tho I have had the right side of my colon & illeocecal valve removed, & so much of Sml bowel that we’re now fighting the problems with so many vitamin, & mineral deficiencies. It’s a horrible disease but I still try my best to get up and make the best of every day, no matter how hard it may be. We have to stay positive, & find a reason to smile, & laugh !! 😅

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The InflammatoryBowelDisease.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • thedancingcrohnie moderator
    10 months ago

    Lynn,

    You are one strong, strong woman. The fact that you are remaining so positive after all you have been through is nothing but inspiring.

    I am so sympathetic towards all you have had to deal with. I too have Crohn’s but no surgery. You definitely have been through a lot and I am glad you have shared your story to show others that they aren’t alone.

    I wish you the best, and I hope your symptoms improve.

    Are you still pursuing Hair and Skin care?

    Always dancing,
    Elizabeth

  • Pam.Kingsland moderator
    1 year ago

    Wow Lynn, Thank you so much for taking the time to share your story. I’m so sorry to hear all that you’ve been through- you really have been through it all! I really admire your strength and your positive attitude. Please keep us posted on your journey – we’re here for you. – Pam (inflammatoryboweldisease.net team member)

  • LynnSanta author
    1 year ago

    Thank you Pam. So nice to meet you and have this group for support.

  • Meagan Heidelberg moderator
    1 year ago

    So glad to have you here!!
    Meagan, InflammatoryBowelDisease.net Team Member

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