HELP! Has anyone had a similar experience?
Hello! I hope you are well. I need help because I’m desperate. I’m new in this forum and I want to tell you what is happening to me. In summary, my digestive problems started 5 years ago. I was diagnosed with IBS and lactose intolerance after some medical checks. When the symptoms continued, they told me it was stress and that I had to go to therapy.
Since April of 2018, I started with diarrhea, mucus, bleeding, fever, and abdominal pain that lasted 3 weeks. On suspicion of UC, I was given Pentasa. After 10 days of taking it, I had a colonoscopy that showed aphthae but biopsy gave non-specific colitis.
Without a specific diagnosis, after 2 months, doctors took away Pentasa. Three months later, I returned with the same symptoms with elevated fecal calprotectin (300). Doctors gave me 4gr daily of Pentasa again, but it never finished helping my symptoms. Until a month ago, I was admitted to hospital for an acute abdomen with a stenosis in the large intestine diagnosed by CT.
After several checks during the medical stay, they ruled out UC infections, among other things, and told me it was Crohn´s. But after 3 days of stopping oral ingestion and being in parenteral nutrition, I had a colonoscopy that showed the same as last year, but the stenosis disappeared without medication. After this, I did the pill cam that showed erosions but not conclusive of Crohn´s.
The doctors know that something is wrong with me but they aren't sure what. They tell me that I´m a complex case and still can´t confirm IBD. I´m in a lot of pain every day. My question is, did someone have a similar history and the disease started like this? Do I have to wait for the disease to get worse?
Thank you!!
I will appreciate any help or opinion!!
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