Selina's Story

By selina

1 min read

I am 43 years old and just got diagnosed with Crohn's Disease at the end of April 2017, after a 4 day hospital stay for the worst stomach pain I have ever had in my life and I have given birth 3 times! Gastro just put me on Prednisone and Pentasa. I was not expecting any of this. I thought it was my gallbladder or maybe I needed my appendix out. I have been looking things up on my about this disease but i feel like I know a whole lot about nothing. Very frustrating!

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SusanHU Community Admin
Hi selina, Thank you for your sharing your story. I'm sorry to hear of your frustration but I hope our site can be helpful as you get oriented with IBD. I also wanted to share an article with you specifically for those who are newly diagnosed, written by one of our advocates with a lot of experience: <a href='https://inflammatoryboweldisease.net/living/5-essential-tips-for-newly-diagnosed-patients' target='_blank'>https://inflammatoryboweldisease.net/living/5-essential-tips-for-newly-diagnosed-patients/</a>. I hope you find it helpful but please keep us posted on our journey and how we can help - we're here for you! - Susan (InflammatoryBowelDisease.net Team Member)
1. selina Member
 Thank you. I will.
2. selina Member
 Thank you so very much for the website links. Extremely helpful!!!
Matt Nagin Moderator
Hi Selena, Thanks for sharing! I have had this condition for 30 years. You definitely learn more as you go through different experiences. It can be difficult or even infuriating at first, for, in many cases, dealing with this condition can require major lifestyle changes. Prednisone and Pentasa are both typical treatments. They are different classes of medicine. Pentasa falls under the 5-ASA type drugs that are for mild Crohn's in most cases. Predinsone, a common steroid, is for moderate/severe Crohn's in more cases and works well but can have side effects. Another option is Entocort, if your doctor is into steroids. Or antibiotics. Or biologic medicines. I hope you feel better and relate to your frustration!!!! Best, Matt (Team Member)
thedancingcrohnie Moderator & Contributor
<inline-mention user-id="2279350" username="selina"/> , I'm sorry you are going through all of this. Getting a diagnosis of CD is always like a punch in the gut. You will adjust and as time goes on you will know more and more. How have you been feeling since you've posted this? I hope things have improved and that your treatment is bringing you relief. Let us know if there is anything we can do to offer support. Big warm hugs, Elizabeth (team member)