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Sickforever

I have had crohns since I was a teenager, I have tried every drug out except the biologics. I was in the medical field and was exposed to TB and even though it wasn’t active I had to be treated for 9 months. THE meds almost killed me. I am terrified of the biologics because of the TB exposure, there are so many side effects. I have been in a flare up for 6 months, I can’t eat and all I want to do is sleep. I am ready to give up ! I don’t know what to do. I am currently trying to find a new gastroenterologist. Many of my family members have crohns also and tried Humeria, Remicade, and they just put my niece on 6MP. The Humeria and Remicade did nothing for my brother or sister. Any suggestions would be appreciated!

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Comments

  • 3 years ago

    I read your story and I was in your shoes at one time. I had a stem cell transplant for Crohns disease that totally changed my life for the good. Do some research on the treatment and maybe you would be a good candidate for this treatment as well.

  • debblack
    3 years ago

    Have you tried VSL#3

  • Sickforever author
    3 years ago

    HELLO Deb, no I haven’t. WILL you please tell me about this ? I would truly appreciate it ! Thank you and have a great day!

  • Dana
    3 years ago

    Hi sickforever!

    We are so sorry to hear about everything you have been going through. Please persist on getting help for your Crohn’s. We know “I’m ready to give up” can mean a lot of things and we care about you – please, if you ever feel like you are a danger to yourself, seek help – the National Suicide Prevention Hotline is always there if you need someone to talk to: 1-800-273-8255.

    We hope you find relief soon and are so glad to have you as a member of our community! Best of luck during your search for a new GI!

    Stay strong!
    Dana (InflammatoryBowelDisease.net Team)

  • Dana
    3 years ago

    Hi Sickforever!

    I am very glad to hear that you do not wish to harm yourself and we completely understand the frustration and fear of changing treatment plans, especially when it seems like nothing is working. It sounds like you are very knowledgeable and are surrounded by people who can offer their personal experiences to help you stay informed. I hope that some of our other community members will connect with you and offer you more personal experiences and support.

    Here are some articles for you to read if you would like some more information on various IBD treatments: https://inflammatoryboweldisease.net/treatment/.

    This link discusses various medications for IBD: https://inflammatoryboweldisease.net/treatment/medications/.

    I hope you find some relief soon!
    Dana (InflammatoryBowelDisease.net Team)

  • Sickforever author
    3 years ago

    Dana, thank you. I would never hurt myself, I didn’t mean to imply that.I just am so sick and tired of dealing with my crohns because nothing seems to work anymore. I explained I am terrified of the biologics because I was exposed to TB and treated for 9 months not because it was active but because of my crohns. I am afraid to try one and it become active. My brother and nephew tried Humeria and my sister Remicade she stays sick even on that. I just feel I am running out of options. I can’t eat and the nausea I’d horrible. I love on zofran. My niece was just put on 6 MP I am waiting to see how that works for her, her side effects are pretty bad already. I am hoping a new gastroenterologist may have some new idea. Thank you for your support !

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