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I’m just so tired

It’s only been a few months but I am sooo tired of all of it. I’m tired of “healthy” blood draws and tests while feeling so ill and in pain. I’m tired of trying new medications, just to find out they don’t work. I’m tired of doctors asking if I’ve tried doing this, avoiding that. I’m tired of explaining to friends and co-workers what is going on with my body and why I am missing out. Why I am running off to the restroom so often. Why I’m not eating this or that. Why I am eating those when I previously turned them down when offered a week ago. Why I look like a zombie all the time. Tired of being told to be more cheerful or being told I don’t look okay. Tired of faking a smile while I grin and bare it through all of the pain and accompanied symptoms, while my doctors go back and forth between IBD and IBS because they can’t agree on if I should undergo small bowel tests, CTs, or MRIs. One says it might not show anything different while the other says to let people test me for anything they want because “you have insurance, so, why not?”. I’m physically and mentally drained….and I still don’t have a solid answer to give people when they ask if the doctors figured out what’s wrong with me yet. So, if a friend sees me out shopping or messages me on social media asking how I’ve been, “I’ve been going through a lot but I’ll be okay. I’m just really tired.”

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Comments

  • RyMc020585
    7 months ago

    You are not alone. I am feeling the same way. It drains you. Symptoms are constant reminders that you are ill, and you don’t feel like explaining it to others. Some get it, some don’t. I had a few week stent that I was actually feeling pretty good. In fact I even started eating some of my favorite foods. Even put a few lbs back on, and then, boom! Backed up again, nausea, pain and cramping in my gut, fatigue, mouth sores, joint pain, incomplete bowel movements, undigested food in stool…. and people wonder what’s wrong…

    It stinks that feeling hungry is less drastic than eating something and it not agreeing with you. Back to bland diet.

    Look into some Crohn’s recipes, and try making smoothies. I haven’t yet but one of my docs wants me to try that.

  • thedancingcrohnie moderator
    7 months ago

    Smoothies definitely helps. For me the game changer was when I cut out dairy, grains and processed sugars. Maybe that will help you too?

    I hope you find relief soon!

    Always dancing,
    Elizabeth (team member)

  • thedancingcrohnie moderator
    7 months ago

    Hi @poonicorn,

    Don’t worry I can’t do rice bread either. I have never tried potato bread, I’m glad you brought that up. Potatoes are a safe food for me. It could be something I can try at some point.

    I know the “game” you are referring too, so well. Is it the meds, my crohns, or something I ate? So many factors can make your head spin. At least you know you aren’t alone.

    Sorry you can’t do much smoothies. Maybe juice? Have you tried celery, cucumber, and apple?

    And the fatigue is always, always such a nuisance. Check your hemoglobin and iron levels. You could be anemic. Also, being on lots of meds can make you feel that way too, of course.

    Ugh, I know how you’re feeling. Hang in there. One day at a time. Focus on eating well and stay hydrated. Do you drink bone broth? It’s a great way to get nutrients without upsetting your system.

    I hope this helps some.

    Always dancing,
    Elizabeth (team member)

  • thedancingcrohnie moderator
    7 months ago

    Hi @rymc020585,

    Have you asked your doc about B12 injections? I’ve had them before and they are helpful. Also have you had your hemoglobin and iron levels checked? You could be anemic which is why you feel so fatigued. At least this would happen to me. Maybe something to explore. I hope you feel better soon.

    Always dancing,
    Elizabeth (team member)

  • poonicorn author
    7 months ago

    I have cut out dairy and most grains. I cannot stomach the rice bread as I find the taste and texture awful (and my wallet agrees)so I have been buying potato bread and that has been okay. Even though it does still have some wheat flour in it, its not really enough to make me feel ill. No matter what I eat though, I always have small amounts and am sticking to the low residue and low fodmap. Almond milk seems to upset me but lactaid is okay. Most of what I can eat though is carbs, fish, and chicken. Currently struggling with getting enough protein. Also sleeping 10-12 hours minimum lately. I’m just so exhausted and 3 of my medications have drowsiness labels on them. “Is it the disease, the medicine, or do I have a cold?” Seems to be a new game I’ve started playing lol. I would love to try smoothies but I can’t tolerate any seeds at all, can’t have blueberries, strawberries, mango, or raspberries, and my s.o. and I work opposite shifts so using the blender at 5am is a no go. I am currently looking for an alternative protein bar that doesn’t contain whey or almonds. I am still extremely tired all the time but the pain and inflammation are being managed now by medications enough for me to get by and accomplish normal daily tasks again on most days

  • RyMc020585
    7 months ago

    I’ve been eating very bland diet. I’ve been trying the listed OK foods from the fruit, vegetables and grains categories. Cut out dairy, cut out sugar. Fiber supplements and high fiber foods set off pain and nausea. I’ve been so fatigued. I started taking a b12 supplement but I dont believe I am able to absorb it.

  • thedancingcrohnie moderator
    7 months ago

    I can so relate to how you are feeling. It is draining to be sick all the time and not have answers. Not have a solid plan of attack to get better due to lack of information. I know how you feel and I want you to know that with time, things will get better. I am better today and just last year, I honestly started to throw in the towel on fighting. I was tired too.

    Take things one day at a time. Exclude yourself from the negativity. Sometimes you need to stop seeing the friends, or the negative family members for a bit and just focus on your health. Focus on you. It’s hard, but only you can get yourself out.

    I would suggest doing your own research. Educate yourself about your body and start by changing your lifestyle. It’s way easier said than done. But, at least for me, I changed the way I ate. I now stay away from grains, dairy and processed sugar. And I take probiotics daily along with a lot of other supplements.

    You can do this! You can heal. I am rooting for you. There is light at the end of the tunnel.

    Message me whenever if you want to talk.

    Always dancing,
    Elizabeth (team member

  • poonicorn author
    7 months ago

    @thedancingcrohnie,
    I am able to do juices as long as they’re diluted with water and I tend to go for apple juice when I need some potassium or vitamin C but I can’t eat the apples as I can’t fully digest it that way. I get anemic sometimes but can’t take iron pills. I get petichea on my upper legs and chest from it when it gets bad. I have always had problems with my potassium levels too on blood draws. Guessing it has to do with dehydration which I have been very good about lately by setting my 24oz waterbottle directly in front of my computer screen at work. I have thought about trying bone broth but I really don’t like drinking broths in general, not really a soup person anymore either as when I first got really sick all I was able to keep down was chicken and rice soup. Literally all I ate for weeks on end and still wouldn’t keep it all down. Maybe I will give the bone broth a shot though. As for the potato bread, it still has wheat flour in it, just not as much because some is replaced with potato however that works. Hopefully spring brings along some better energy

  • thedancingcrohnie moderator
    7 months ago

    @poonicorn,

    Have you asked your doc about iron infusions? I too can’t do the iron pills.

    And yes! May Spring bring us all some new amazing energy!

    Always dancing,
    Elizabeth (team member)

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