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So Very Tired

No energy. Can barely get up to go to the toilet. Hardly can make it in time. My urgency is rough. Sometimes leaving a trail of blood, and urine from feces. At times mucus. Last night I thought about going to the emergency room. Every 15 minutes I’d fill up with blood and it along with feces, blood, mucus , and urine would start shooting out of my body. Then I started feeling nauseous. Still do. Don’t feel well at all.

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  • thedancingcrohnie moderator
    1 year ago

    Ugh, I am so sorry you are going through this and I hope you are finding relief these days. You have a community here that cares, always. I can so relate to this and I’m sending you tons of healing vibes. Press on, warrior.

    Always dancing,
    Elizabeth (team member)

  • 4 years ago

    It is exhausting, I agree. How long have you been diagnosed?
    I have been dealing with this for 35 years. I would be happy to tell you more.

  • Stephanie Huston moderator
    4 years ago

    Thank you so much for sharing your story! I’m so sorry you’ve been struggling. But you’ve come to right place – we are always here to listen and support you in any way we can! We’re so glad to have you as a part of the community! -Stephanie ( Team Member)

  • 4 years ago

    So sorry, I hope you get some relief. Not sleeping is the worst I also have been up for what feels like weeks. On a strong dose of steroids and have a IV which makes me pee every hour. Tried taking trazadone but the pain and steroids and peeing will not let me sleep.

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