This is my story...
Hi - just joined so thought I would share a semi brief of my life with Crohn’s. Diagnosed 13 years ago after about 18mths - 2 yrs of symptoms. Too scared to say anything to anyone with the amount of blood coming out in the toilet. Then dealing with a anal fissure seeing different Drs, a surgeon to fix fissure who then sent me to a GI for tests & diagnosis. Reached remission with meds. Had a baby with just monitoring and no issues. Came off all meds & symptom free...pregnant 3 years later & flared REALLY badly. Had bub emergency caesarean with burst abscesses everywhere. On meds again, which didn’t work, then started infliximab infusions. 13months later ended with a perforated bowel, emergency surgery and an illeostomy bag. Reversed 9 mths later. No active disease but many many hospital admissions with obstructions. 18mths later had gall bladder removed with adhesiolysis due to dense adhesions. 3 dilatations done to stretch stricture. Another open resection 4 months ago to cut through adhesions top to bottom and another right hemi-colectomy to remove stricture. Just had scope yesterday which still says no signs of any Crohn’s and everything looks perfectly normal with no strictures!! Yay, right???? So why don’t I feel as good as my colon says I should?? Joint pain has increased & woke up on my 40th bday unable to straighten my elbow. Pain some days then fine the next. Seeing Rheumatologist in a couple of weeks for the first time. Thanks for reading my novel 📚
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