Skip to Accessibility Tools Skip to Content Skip to Footer

This is my story…

Hi – just joined so thought I would share a semi brief of my life with Crohn’s. Diagnosed 13 years ago after about 18mths – 2 yrs of symptoms. Too scared to say anything to anyone with the amount of blood coming out in the toilet. Then dealing with a anal fissure seeing different Drs, a surgeon to fix fissure who then sent me to a GI for tests & diagnosis. Reached remission with meds. Had a baby with just monitoring and no issues. Came off all meds & symptom free…pregnant 3 years later & flared REALLY badly. Had bub emergency caesarean with burst abscesses everywhere. On meds again, which didn’t work, then started infliximab infusions. 13months later ended with a perforated bowel, emergency surgery and an illeostomy bag. Reversed 9 mths later. No active disease but many many hospital admissions with obstructions. 18mths later had gall bladder removed with adhesiolysis due to dense adhesions. 3 dilatations done to stretch stricture. Another open resection 4 months ago to cut through adhesions top to bottom and another right hemi-colectomy to remove stricture. Just had scope yesterday which still says no signs of any Crohn’s and everything looks perfectly normal with no strictures!! Yay, right???? So why don’t I feel as good as my colon says I should?? Joint pain has increased & woke up on my 40th bday unable to straighten my elbow. Pain some days then fine the next. Seeing Rheumatologist in a couple of weeks for the first time. Thanks for reading my novel 📚

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Julie Marie Palumbo moderator
    1 year ago

    Thank you for sharing your story with Crohn’s, JulesB!

    I have heard that pregnancy can cause IBD symptoms to go into remission, and I am glad you had 2 successful pregnancies, albeit an emergency c-section. How are your children?

    Your rollercoaster ride with Crohn’s is quite full of ups and downs, but I am glad to hear you are currently symptom free (GI-wise) and hope you find relief soon with your joint pain.

    This article may shed some light on joint pain with IBD, as you are definitely not alone!

    Thanks for being here!

    Julie ( Team Member)

  • thedancingcrohnie moderator
    1 year ago

    Hi @julesb,

    Thank you for taking the time to share your story, you have definitely been through so much. You are such a warrior for powering through it all. I know how confusing it may feel to be told you you are “perfectly normal” yet still feel crappy. Maybe this article may help?

    I hope you continue to heal, you have come such a long way and I know many who read your story will be inspired!

    Wishing you the best in health.

    Always dancing,
    Elizabeth (team member)

  • Poll