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It’s a Journey

My story began later in life. At age 62, happily retired and enjoying life, I started having symptoms that could not be ignored. Found out I have mild/moderate UC from a colonoscopy. I was lucky and my flares are infrequent and it has been well controlled with Asacol HD for 7 years. However, it turns out that now my auto immune system has decided to attack my joints and have been diagnosed with Enteropathic arthritis, which will need to be treated with methotrexate or humira. So far, I can deal with the disease, although I have a hard time with fatigue all the time. Dealing with people is the challenge for me. Other people don’t understand that I’m really tired and a nap won’t fix it. No I can’t do an all day outing, and no I don’t travel unless I have access to bathrooms. If I’m flaring, even leaving the house is not an option. And no, I can’t cure it by just taking immodium or changing my diet. Oh and your IBS is not the same as IBD. My heart goes out to those who have severe UC or Crohn’s and I hope for remission for everyone.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • thedancingcrohnie moderator
    7 months ago

    I know how frustrating this disease can be. It is never easy, and the worst is having people be unsupportive. Unfortunately, people are so quick to judge and assume and it is so hurtful, especially to us who are truly suffering and trying our best to just be healthy. Continue pressing on, warrior. You are strong and you’ve made it this far.

    Always know you have support here, and everyone in this community understands the struggle and understands the hurt.

    Wishing you the best, always.

    Always dancing,
    Elizabeth (team member)

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