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When the caregiver has a chronic disease and dies 1 year after his mother

My story is about my husband. He passed away June 1, 2019 from complications from Crohn’s disease. He was diagnosed 12/10/2007. We did not understand his illness fully. We needed support. Once my husband’s illness became really bad, he was in the middle of taking care of his elderly parents, so he ignored his health. He needed surgery. By time he had surgery, he had developed cancer. My husband’s doctors gave him a colostomy bag in May 2018. It was reversed August 2018. He didn’t get treatment for the cancer until Jan. 2019 and the cancer treatment made him worse. He passed away in June 1, 2019. I miss him. We did not understand his illness to make better decisions. The health industry failed my husband and I.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • crystal.harper moderator
    5 months ago

    I am so very sorry to hear about your husband passing. I just want to echo what Graceann said and let you know that we are all here for you and will support you in any way we can. Thank you for sharing this with the community. Being open about things like this is what helps others make educated decisions in the future.

    Sending you love and hugs, Crystal

  • gpalmarella moderator
    5 months ago

    Hi @ellaquietstorm. I wanted to send my deepest condolences to you and your family. I am so sorry to hear about the loss of your husband. Thank you for sharing this story with the community and for using this as an opportunity to warn others about Crohn’s when it comes to treatment decisions. I can only imagine how hard it was to share this. We’ll be thinking of you. -Graceann (IBD Team Member)

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