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How old were you?

My 5 year old boy has been suffering intermittently with pain in his bum for the last 2 years. It lasts anything from a few days to a week and then passes. The other day i rushed him to hospital as he was having an episode and i found a large lump in his anus. The doctors took him down to surgery and found a large abscess and a fistula. They couldnt repair it and had to put in a seton. They also took a biopsy. They will be taking him down for more surgery once his inflammation has subsided. The consultant told me that it is very rare for a child of his age to be diagnosed with crohnes but he couldnt answer me why this happened except that he has trouble emptying his bowels properly and it could be due to that. He wont eat pasta, bread, potatoes either which makes me wonder if they upset his stomach.
How old were any of u? And what were ur symptoms?
Any advice? Thanks x

  1. I can't imagine having perianal symptoms at that. I'm so sorry for your son!

    Sounds like definite pain in that region due to a fistula, which can happen in Inflammatory Bowel Disease.

    Here are a few tools to better understand the symptoms. Hope they help!

    https://inflammatoryboweldisease.net/symptoms/complications/fistula/
    https://inflammatoryboweldisease.net/symptoms/complications/

    Best,
    Kelly, Team Member

    1. Thankyou. Its been 15 days and still no results for biopsy. Blood tests show he is low in iron (7) and b12 (tho not anemic) and had an inflammation level of 14 or 17 i think, which they said was probably infection due to the abscess. He is on iron supplements and he is much more comfortable with his seton in.
      So frustrating waiting for results of the biopsy... no news is good news i suppose x

      1. His biopsy results are back. Inconclusive but shows chronic inflammation, iron and b12 low and inflammation markers up.
        Consultant hasnt looked at them yet... wondering what this means? How is it inconclusive but showing chronic inflammation? Confused x

        1. Mine began age 13

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