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Symptoms

Joints,skin,eyes

  • By Goldioz

    What is the mechanism that has led to these symptoms which I know are fro inflammation to be worse than my bowel problem. Is there a chicken and egg thing when you have more than one auto immune disorder

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  • By Piper

    I think they go hand in hand, I’m afraid. The inflammation from the bowel problem causes the other stuff to act up. For me, the worse the bowel stuff, the worse the other stuff.

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  • By Anita49

    Of course, the bowel stuff is the worse partt but i also deal with exema and inflammation in my eyes and have to use eye drops daily. Its so crazy how Crohns effect so many different things.

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  • By Piper

    Absolutely!! I have had ongoing skin problems, and sores in my mouth. It all sucks!!
    Also, permanent damage from years and years of Corticosteroid use. When I was diagnosed in 1981, Prednisone was the most commonly used med. I became my doctor’s youngest Osteoporosis patient at 34 years old! Now, at 55, will be having a cataract removed!

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  • By Rob Russell

    I’ve developed RA. Gastroparesis. Hypothyroidism. Gerd. And am hypoglycemic. All started with crohns disease. I also have been on large doses of prednisone for years. Most of my teeth are broken and my bones are weak. About two summers ago i broke my wrist and heel bones.

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  • By Piper

    So sorry, Rob. The Prednisone is like a miracle as far as getting things under control quickly (bowel), but it has so many side effects.
    I a so sorry to hear of anyone having such a difficult time. You have been dealt a really lousy hand.
    Know that you are never alone. I am having an extremely tough time as well, and may be going to the Mayo Clinic. There is likely an obstruction in the small intestine, that is not showing with CT scan, and the scope cannot get up that far in the colonoscopy. I have had so many surgeries, trying to avoid another big one if possible.
    Mayo Clinic may have ideas as far as how to know if obstruction is due to the Crohn’s, or due to adhesions and/or scar tissue (which has happened in the past). They may also be able to do a laparoscopy rather than another huge incision.
    I need to speak with my doctor further, before I make a decision. Remember, though, there is always another doctor, and always a different hospital. The big teaching hospitals have the newest technology and ate constantly doing research.
    Thinking of you…

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