caret icon Back to all discussions

Strange IBD Symptoms

There are a lot of strange or unexpected symptoms of IBD. Which symptom or experience has surprised you most since your IBD diagnosis?

  1. Being cold all the time

    1. I, too, am always cold. I have a partial obstruction due to adhesions from many abdominal surgeries in the past.

    2. Same! Being cold was a surprising one for me. It wasn't until I got better and got my anemia under control that I realized the coldness, for me at least, was from the anemia. Now that my hemoglobin and iron levels are normal, I never get cold! Before, it would be mid-summer and I was wearing long sleeves and constantly had ice cold hands and feet. Not to mention I had to sleep in long sleeves, sweat pants and long socks!

      Always dancing,
      Elizabeth

  2. Thank you for sharing, Ginny4premier!
    Meagan, InflammatoryBowelDisease.net Team Member

    1. Constipation. Hemmeroids . Backaches. The never ending medicine list. The way the people you love and trust most say they understand, and you thing they do, but in the heat of the moment you realize they cant.

      1. Hi LanaReece, thank you for sharing these! It can be hard for friends and family to understand but know that we are here for you! - Susan (InflammatoryBowelDisease.net Team Member)

    2. Using pressure to help with painful adhesions in the abdomen, it seems that no one I talk to has this problem.

      1. Thank you for sharing that Jpouchmama! I hope you'll find someone else who shares your experiences! - Susan (InflammatoryBowelDisease.net Team Member)

    Please read our rules before posting.