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  • I wandered how many others with Crohns have bowel movements that contain undigested food bits.

    My 5 year old boy has been suffering intermittently with pain in his bum for the last 2 years. It lasts anything from a few days to a week and then passes. The other day i rushed him to hospital as he was having an episode and i found a large lump in his anus. The doctors took him down to surgery and found a large abscess and a fistula. They couldnt repair it and had to put in a seton. They also took a biopsy. They will be taking him down for more surgery once his inflammation has subsided. The consultant told me that it is very rare for a child of his age to be diagnosed with crohnes but he couldnt answer me why this happened except that he has trouble emptying his bowels properly and it could be due to that. He wont eat pasta, bread, potatoes either which makes me wonder if they upset his stomach. How old were any of u? And what were ur symptoms? Any advice? Thanks x

    Hello! For the past 2 years I've been having chronic diarrhea, cramping in my lower right abdomen (but sometimes left). I've cut out almost everything from my diet including gluten but I'm constantly sick (going to the bathroom 5-9 times a day when I work out it's more 12-15 times a day). My 1st cousin has ulcerative colitis and I had blood in my stool occasionally so I was so sure I had that. But I just had a colonoscopy and my dr said it looked clear but they did take some biopsies and I have a follow up in a week. I am just so worried about being told I am faking or that it's just IBS when I am sick 24/7 and have already tried cutting everything out of my diet. I was just wondering if anyone has any other experiences similar to this so I know what to expect moving forward?

    At 18 I found blood in my stool told my doctor and they sent me for a colonoscopy (my dad passed away of colon cancer at 40). They said it was nothing I was fine just some tears and tiny hemorrhoids. I turn 20 way more blood and issues. They send me again this time he comes back and says ok there were a couple polyps, white spots and inflammation but then laughs and says it's nothing to worry about I dont even think you are your dads daughter. So that made me really mad. It was the same doctor doing the colonoscopy both times. Also the doctor my dad had. I was there because of the blood and pain wanting to know what was wrong why it kept happening and he apparantly thought I was there because I was afraid to die like my dad? I mean yes I didnt want to die but I was there for a reason of my own my own health issue not because I'm just a worry wart. So now I'm 22 and it's still here. The last three days have been blood and today a blood clot. Along with white and mucus looking parts. And it hurts so bad to even try to use the bathroom. My stomach has been swollen out for a couple days and today I finally said ok maybe it isnt going away maybe I should go see the doctor. But now I am terrified of the same thing happening again. I dont want a $3000 bill for someone to laugh at me because they think I just haven't gotten over my dad dying. I'm anaemic and we didnt find that out until I went to have a surgery because my menstrual wouldnt stop. So she gave me some iron and went ahead with the procedure. I havent been back to a doctor sense my last colonoscopy because it made me so mad. But now reading about ulcerative colitis so many things match up. I've never understood why I got so many mouth sores. I had decided before maybe i had just spouts of crohns or something with the urgency to go and it always being mainly loose stools. But after running into ulcerative I feel like that is dead on what it is. Did anyone else have this much trouble finding out what it was that you had?

    Hey everyone. I'm new to this group. I've been having what seemed like flare-ups of symptoms that started 3 years ago and I've always muscled through them because I'm not one to go to the doctor. My symptoms were like this: lower left and upper right abdominal pain, increased urge to go to the bathroom with no stool or very little, constant nausea that kept me up all night for weeks, weight loss (BMI of 14.2). This happened to me twice a year but I always shoved it aside and told myself it's just a stomach bug and it'll pass. Usually it did pass within 2-3 weeks. Well this year I landed in the hospital because I couldn't even drink a glass of water anymore, that's how bad my nausea was. Ultrasound was clean, basic blood work showed nothing but profound dehydration and I was sent home with nothing but a couple prescriptions for nausea and heartburn. ER doc recommended I see a gastroenterologist. Fast forward to a few weeks later, I'm still having symptoms but I saw a gastroenterologist who said it could be IBS. I didn't know anything much about IBS, let alone IBD. Now that I looked up IBD, I realized it perfectly describes me. I am surprised that my doctor didn't even mention it. He did send me to the lab for a stool test called fecal calprotectin, which I looked up and is supposed to test for IBD. Does anyone here have IBS and IBD? What is your experience? Is it true that I might just be scaring myself by looking up IBD, when all I could have is IBS?

    Hi everyone! I've been reading through these forums and have learned a lot! I'd like to share my story and maybe get some advice on what questions to ask or things to bring up at a doctor's appointment. Sorry, this is really long. I'm a 28 year old female and ever since I was in high school (more so my junior and senior years) I've had issues with abdominal pain and persistant diarrhea. I'd have to get up and run to the bathroom several times during class or stay home all together if it was particularly bad. My mom, who never believes anyone is ever sick, became concerned and we researched some things to try to improve my situation while we waited for an appointment with the GI specialist. I tried a gluten free diet at the suggestion of a friend who has celiac, and it really seemed to help. The GI specialist I saw was seemingly annoyed by my just being there but agreed to do a endoscopy. He very rudely told me my results were completely normal and gave me antacids and said "it's probably heartburn, maybe IBS." I decided to stick with the gluten free diet and have been gluten free for almost 10 years. Over the years I have still had issues with diarrhea and abdominal pain, enough to negatively impact my life. I've had to miss work and school, cancel on plans with friends, etc. I used to travel internationally (13+ hour flight) twice a year and I would eat nothing while I traveled so I would run the risk of dealing with diarrhea in the airport or on the plane. Obviously none of this is normal but I was so traumatized by how that first GI doctor treated me that I didn't want to go back. About 5 years ago I ended up having issues with pain in my chest and joints. The chest pain was determined to probably be inflammation in the cartilage between my ribs (costochondritis) and the rhuematologist I saw wanted to do blood tests for celiac when I told him about the diarrhea, which came back negative. He made me an appointment with a GI doctor for a colonoscopy but I cancelled it because I was scared. In 2016 I got pregnant and around 5 months into the pregnancy started having a constant tenderness in my right upper quadrant. My OB thought it was my gallbladder so I had an ultrasound done which showed no stones so the OB said it was probably just normal pregnancy pains. The pain was still there when my daughter turned one so I went to my PCP. She tested me for H. Pylori (negative) and gave me a PPI to take for 6 weeks, which did nothing. I demanded a referral so I was sent to another GI office. I saw a nurse practitioner first who told me it was possible to still have gallbladder issues without stones so she sent me for a HIDA scan which was just barely outside of normal range. I saw the GI doctor at my follow up appointment and he was not convinced it was my gallbladder. He said he wanted to do and endoscopy and colonoscopy and, if those were normal, he'd send me to a surgeon to remove my gallbladder. So I did the endoscopy and colonoscopy the same day. The doctor said the endoscopy showed some inflammation in my esophagus but didn't seem worried about it. He also said he found a few polyps in my colon but he didn't think they were anything to worry about. Pathology didn't show anything concerning about them. So I was sent to the surgeon and had my gallbladder out. This was well over 8 months ago. I felt really good after my surgery, no more pain, no more diarrhea. I was worried because I heard that diarrhea problems were common after gallbladder surgery. I thought this maybe had solved my problems. However, in the past month or two, things have gotten so much worse. The diarrhea is so unpredictable and if I have anything I need to do during the day I basically can't eat anything at all. Even that isn't enough sometimes. I had a meeting to go to at school recently so I avoided eating anything before hand and I still got sick. It came on so suddenly while I was driving I couldn't even pull over anywhere. It was the most embarrassing thing that has ever happened to me. The stomach pains have been awful too. It gets so bad some times that I can't even stand up straight and I come very close to telling my husband to take me to the ER. It often feels like I'm going to have a bad diarrhea episode but then when I go to the bathroom I struggle to pass anything and if I do it's hard, dry stool. I'm currently in nursing school and dealing with this plus school is so stressful. On the days I have clinical I don't eat until I get home. I've lost 30 lbs since August. I'm worried because next semester I'll be in the hospital for clinicals a lot more and for 12 hour shifts so I don't know what I'm going to do. I've made an appointment with a new primary care doctor so that I can get a referral to a GI specialist. It really sounds like Crohn's or something else that I'm dealing with, which terrifies me. Any input or suggestions for me? I'd appreciate anything anyone can share.

    Hi Everyone, relatively newly diagnosed UC here. I guess my symptoms were a textbook case up until my diagnosis via colonoscopy in this january. Cramps, diarrhea, bloating, blood/mucus/pus in stool, lots of weight loss, lack of appetite, nausea etc. I was prescribed Salofalk 3g granules. Now the Salofalk treatment and low-residue diet seems to have worked well, I have 2-3 bm-s a day, some minor cramps and flatulence here and there, but mostly I'm fine. The one thing bugging me, is that I still see blood in my stool almost every time I have a bm. I was also diagnosed with hemorrhoids, but the blood I see is sometimes darker in color and sometimes it's approx. a spoonful. Does any of You experience blood in stool in remission? Is that common? As I'm fairly new to the disease itself I'm not even sure how I should know whether I'm in remission or not. I'd like to know your thoughts.

    A dentist is a person who deals with all the issues and makes sure that your dental and oral health is in a good condition. It is quite necessary to find good dental services. The thing is if you find the perfect family dentist for your family, he/she can give you good tips as well as take care of your generation dental problems.

    Morning. Had endoscopy + colonoscopy Wednesday. I was told bowel looked normal but they went on to take a total of 20 biopsies! 8 from endoscopy 12 from bowel. Is this excessive? I was under the influence it would be a couple of biopsies not that many! Also - bit worried it’s going to come back as ibs. I’ve been ill for over 10 years and the last year I lost 2 stone in a matter of weeks could barely eat crippled in pain never known anything like it. I get bloody mucus sometimes unreliable bowel movements. Whilst I’m pleased they didn’t see anything sinister (massive relief) I am concerned they will just diagnose ibs and I will be left to get on with it!! How many biopsies did you have? They suspected UC but clearly no signs on the day

    I've been suffering with some strange symptoms for four years. I have periods of time where I am severely nauseous-- like can't stand up straight, need to be near the toilet at all times kind of nausea. It's completely debilitating. I also have suffered with extreme constipation issues my whole life, and in the last six months they have gotten increasingly worse. I know these aren't typical IBD symptoms but has anyone had some experience like this? They've ruled out gallbladder, gastroparesis, and an upper endoscopy came up clear...? Any advice is appreciated. Thank you : )

    Hi I’m awaiting colonoscopy for what I suspect is Chrohns. I’m just wondering if anyone else ever feels swollen inside their abdomen and to the side. (not quite where food sits after you eat). Not the same as feeling bloated like after a big meal (where you can feel the food taking up space) but swollen, like your own insides are taking up space. I know that sounds ridiculous but I can’t quite explain it another way!

    Good afternoon All, I hope everyone is well. I need some advice/assistance if possible, I am 38 years old and have been having bowel issues on and off (mainly on) for 2 solid years. I have had 3x colonoscopies, 2x CAT scans and an endoscopy - all clear, which is great but annoying. Symptoms (When flared up); - lower left abdominal pain just above left hip, comes on usually after passing stool and is not relieved by passing stool (pain not there when I wake up) lasts the day and is dull. - feeling like I need to go back to the toilet when I’ve just finished and if I do not much happens. - a feeling that my bowel/colon is swollen, I feel I need to urinate a bit more like is getting compressed (no blood but some mucus). I go to the gym a lot and eat 6x a day quite high protein, so I thought maybe my poor bowel isn’t getting a rest from this hard to digest food and that’s the issue ? I switched over to a keto style diet 2 weeks ago and I defiantly got some relief. Then on Friday we had a binge treat meal (pizzas, chocolate ALOT of food). Went to sleep, woke up and bang it’s back again. It like it’s not something I am eating more when I eat a lot my bowels can’t cope ? Honestly any advice is appreciated, besides doing a pill cam or getting a comprehensive digestive stool analysis done I am kinda lost.

    I've had symptoms for years but it wasn't anything chronic. Every once in a while since I had my last son in 2006. He was a c-section so I thought that maybe they didn't put everything back correctly. They did. It started getting worse the last 5 years. Most of the time it's a "normal" diarrhea. Lately, it's been completely liquid. Nothing solid whatsoever. Today I was in the bathroom every 15 minutes since 5 am. The only cramping I ever had was when I was getting my period. I'll tell you though, my period made this a whole lot worse. I've always been anemic. I was diagnosed when I had my oldest in 1987. Nothing was ever done about it. I have high blood pressure which runs throughout both sides of the family. I have mild arthritis. I also have hypothyroidism. I take meds for the blood pressure and thyroid. I am also on prescription iron and potassium supplements. My levels were low and have since evened out. I had a colonoscopy and upper endoscopy 2 years ago. They found absolutely nothing. I mean nothing. It doesn't matter what I eat. Even though I am careful, I'm right back in the bathroom. My doctor is trying to tell me that this is anxiety or stress based since the tests showed nothing. The weird thing is that I can feel it gurgling through my intestines. Sometimes it's so bad other people can hear it. Like when you're hungry you can hear your stomach growl. I'm at the point where I'm afraid to eat anything. I had to quit working because of all this. Thanks for reading.

    I first started experiencing severe stomach pains in September 2015. Doctors thought that this was likely Gastritis and gave me Omeprazole which I took for 2 weeks and this stopped the pains. After this I was tested for H pylori antigen (negative) and sent for an upper abdomen ultrasound which showed nothing. I continued to get these pains probably around 10-15 times between September 2015 and May 2017 and noticed that they were usually triggered by greasy foods or alcohol. Due to knowing that Omeprazole eased these symptoms I rarely visited the doctors with this pain and tried to cut these out of my diet where possible. In May 2017 I went to the doctors again so that the pains were documented and found that when they did tests, that my calprotectin levels were over 300 (my doctors only documented if the result was over 300 or under 100 so I do not know how much over 300 this result was) and redid the H pylori test again which returned negative. They asked me to repeat samples again in 3 months’ time and due to my calprotectin levels not being as high, so they did not take any further action. In February 2018 I started to experience excruciating pain in my lower left side which would not go away even when I was taking Omeprazole, so I went to the doctors again. My calprotectin levels were over 300 for the second time so they did some blood tests to find that I had a B12 deficiency, an iron deficiency and a folic acid deficiency so I was referred to a gastroenterologist with possible IBD. They also ruled out Coeliac disease due to tests being negative. I cut red meat out of my diet due to this triggering symptoms so doctors also said that this could also be why my iron levels are low as I was not anaemic. I had another abdominal ultrasound in April 2018, a colonoscopy & 8 biopsies in May 2018 and a barium meal in June 2018 which all came back with no results or signs of IBD – So I was signed off by the gastroenterologist with probable PI-IBS (Post infectious IBS) and told to go back the doctors once I was experiencing symptoms again. In November 2018 I went back to the doctors with pains again and had a calprotectin reading of 900, so was re-referred to the gastroenterologist. The issue I had was that due to a range being recorded rather than an actual figure in previous tests, they were unable to compare if reading was worse than previous times. A couple of days ago I had an endoscopy with there being no visual signs of IBD, although they did find a 4cm sliding hiatus hernia. They took 4 biopsies during the endoscopy but I have not received results for them yet (they take 4-6 weeks) and I am waiting to hear back after a referral for a camera capsule test & my blood test results. I know Dr. Google isn’t the most reliable source, but after reading things about it I just don’t think my symptoms match up and I still think that it could be IBD. I am 21 years old and I was just wondering if anyone else has had troubles with a diagnosis or if anyone else has had a similar experience to this. I am not asking for any medical advice as I am still yet to hear more details about my results and this is still ongoing, but I just feel like this whole thing is going backwards and forwards constantly and it is quite stressful.

    Hello everybody, I’d like to share something I did, that is probably helping me. I’ve had moderate IBD for over a year now. I tried many treatments, with little to no effect. I started logging everything about my dietary habits to see wether I could find a relationship between certain foods and symptom severity; sure it got worse for me when eating spicy stuff, or gluten rich foods, but that was it. Only two months ago I began an analysis of other factors, including my hygiene routine. Normally I shower everyday, scrubbing most of my skin with liquid soap and washing my hair twice with regular shampoo; I never walk barefoot so to prevent foot fungus infections; and I have a rigorous oral hygiene routine where I first use floss, then a waterpik (water pressure gum cleaner), then I scrape my tongue, then I brush not only the teeth but also the inside of the cheeks, the palate and the tongue before finishing with a one-minute mouthwash, three times a day. Why this rigorous? It is the only thing helping my halitosis. I have been doing this type or mouth cleaning for more than two years. Three weeks ago I noticed my tongue was very dry, whitish-greenish in color, so I decided to skip the tongue scraping for a few days. After a week or so I noticed quite less abdominal pain, and some halitosis returned. My tongue was pinkish and moist, just like a healthy one. By that time I wondered wether my excessive hygiene had a relationship with my bowel disease? I decided to ditch the floss, waterpik, tongue scraping and mouthwash, keeping only a regular teeth brushing only once a day. I stopped scrubbing my skin, now when I take a shower I only wash the armpit and groin areas, and shampoo my head only once. I even again started to walk barefoot indoors. My symptoms improved more than 80% over the course of two weeks. Sure the halitosis has returned and my shoes are only a bit smelly, But I rather live with that than being miserable from IBD symptoms. Probably in my case there is indeed a relationship, and I really hope for this recovery to persist. It may be that this is only working for me, but it might be worth a shot if you think your hygiene is strict as mine used to be. Good luck!

    White teeth is like a dream to many people, especially those who are dealing with many oral problems, have yellow teeth and are not sure about how to get rid of them. There are many kinds of teeth whitening treatments available for them through which they can get the type of smile they always wanted.

    Hi all, I’m new to this forum as I have suspected IBD, and will be having a flexible sigmoidoscopy tomorrow. I’ve been OK until this point, but starting to feel a little apprehensive about it all now, especially as I was referred through the urgent two-week route. Is this normal for suspected IBD? Main symptoms are: * A sudden change in bowel movements since the beginning of December - started with chronic diarrhoea, then constipation (although now slowly starting to become more regular) * Passing blood and mucus with every bowel movement - blood is mainly in the stool and maroon red * Pain, mostly just before and after a bowel movement * Bloating * Fatigue I have always suffered with bloating and some pain but never thought anything of it until I started passing blood. I also haven’t experienced any weight loss; in fact I’ve gained around a stone in the last 18 months - this is unusual for me as I’ve always struggled to gain weight. My blood tests came back normal, apart from low iron, but my faecal protection test came back as positive. Any advice on what to expect tomorrow or where to even start after being diagnosed would be gratefully received :) Thank you

    Just now I had another filling come out. This is around the 5th or 6th one. Since I have had Crohn's I have had 6 root canals, and had to have 2 teeth pulled.. Is this due to my Crohn's? I heard that it can affect your teeth.

    I have been experiencing along with UC psoriasis and very itchy skin. Anyone else ?

    Hi all. I'm new to the forum, and new to this ailment. I am 33 and used to consider myself pretty healthy. My diet has always been what I thought was "reasonable" for an American. I was never under or overweight, though I did start to set records on the scale in my late 20's and lose that college physique. Around that time, I had a couple hemorroids. A little blood when I wiped, an occasional external one. Once, I even had one removed. That hurt like a bastard, and I swore I'd never do THAT again! Anyway, I started to notice blood on the toilet paper again a bit over a year ago. I thought, oh, another hemmoroid, but then I started to notice mucous on my stool. I was on a 3mo work trip abroad and wanted to wait to get back state-side to go to the doc. I was still finding blood, and more of it on my toilet paper when I got back and my GI ordered a colonoscopy. When I found out how much they cost, I cancelled it. I was traveling to my home country, where at a fine clinic, you can have a modern colonoscopy for 1/10th of the cost. So I did that. The doctors there diagnosed me with Unspecific Ulcerative Colitis. By then, I was seeing blood nearly every time when I wiped. I didn't even know what Colitis was! So they prescribed me mesalamine. It worked like a charm! I stopped bleeding within a day or 2. Everything went back to normal, and it was as if I was cured. Well, I ran out of the stuff, and the bleeding came back. So I went to another GI here in the states, and they put me on Apriso (a mesalamine cousin, basically a delayed-release Advil to reduce inflammation in the colon). At first, that worked wonders, but then, the efficacy wore off. Now I'm taking 4 375mg pills per day and my toilet looks like a had miscarriage every time I move my bowels. When I watched the video of my colonoscopy, I was surprised by how normal everything seemed. It was only at the very end, in the lower colon where I saw some reddening and a bit of blood (very minute amount). But it didn't seem alarming, looking at it. But my symptoms have continued to get worse since then. Now when I void my bowel, the stools seems to back up, then with a push, rush out, like there was a restriction there. It never comes out slow and steady like before. And when the stool comes, so does the blood. It drips into the bowl, especially when I strain.There is some cramping lately as I void bowels, but only then, and it's not unbearable. Just a bit of cramping, then it goes away. I do sometimes feel a bit nauseated while cramping, and that feels very odd. Otherwise, I seem to be fine. A while back, I tried Juicing, to give my bowels a rest, in hopes that it'd heal on its own. I lost 15lbs those 1.5 weeks, but I still have fat on me. I can even stand to lose 5lb more. I haven't been losing weight since. No foods hurt me (right away). It's only when I release them that they avenge my gluttony. Later, I discovered Jini Patel Thompson's "Listen to Your Gut" book and forum. I am currently following her protocols for Ulcerative Colitis: taking the 3 Natren Probiotics (in powder form), taking the Wild Oregano Oil, as well as the Mucosaheal pills. After about a week, I see no results. I'm still on the Apriso. A week or 2 ago, I developed this thing where I cannot pass gas without a bit of liquid coming out first. It's to the point where each passing of gas has to be on a toilet. These wet farts are waking me up at 5am each day for the past week and forcing me to the bathroom. It doesn't seem to matter what I eat or drink. When I pass the liquid protion, there seems to be some sediment in it, like dissolved stool and mucous. When I pass the liquid/gas, I feel like there is more, but when I strain, only boold comes, dripping into the bowl. So I stop. After that, I feel fine. What gets me is that all stories of UC include FATIGUE, DIARRHEA, and CRAMPING. I have none of that. I feel fine. I'm rennovating my home, lifting things after working a full day, waking up early, and going to bed late. My stools aren't liquid, but aren't hard. They're normal, I'd say. And the only cramping I have is just lately, and only when I void my bowels. So with these symptoms, I wonder if I wasn't misdiagnosed. Maybe I have just a bad case of hemorrhoids or something? I tried showing my video to my GI, and she took the most cursory glance at it before agreeing with the UC diagnosis. I'm still not convinced...
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