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  • I am pooping a lot and Unable to gain Weight

    Hi All,

    Lately I am feeling depressed and exhausted with these symptoms. It started one and a half year ago.

    Suddenly I started feeling gassy one day and started pooping a lot than usual. I mean pooping twice than what I was eating (really I mean that). I was loosing weight so fast. I lost 12Kg within the next 6 months.

    I have countless number of tests like Endoscopy, Complete Blood test, Liver Function Test, Sugar test, Thyroid Test etc. All normal.

    As of now, I am pooping 3/4 times a Day but it is all normal. Docs are not helping me. They don’t know what is happening with.

    I am feeling totally devastated and don’t know what to do.

    My symptoms are –

    Pooping a lot (but formed stool no diarrhoea at all)
    Feeling gassy occasionally
    Unable to gain weight (height 5.4 and weight 42kg )

    Does anyone here have the same symptoms? Please help me. I will be forever thankful.

    kind regards

    Seeking advice on whether what I have is CD or not…

    Hello everyone! I’m new here and I wanted to get an inkling on what you think about my condition. Any help would be greatly appreciated.

    I think it started about 5 years ago now. I was drinking with some friends from university. I only drink very occasionally and I very rarely drink more than just enough to get me tipsy. This instance however, I suddenly feel a sort of sharp and gnawing pain in my upper middle abdomen, just below my sternum. Although the pain was severe, it went away within 24 hours so I wrote it off as something minor that may be due to the alcohol.

    Few months down the line I again experience the same pain after a minute (few sips) of beer while out with friends. Again, went away after a few hours.

    However, the symptom came back seemingly untriggered a couple of instances within the next few months. Finally, I decided to have it looked at and my doctor said it was probably costochondritis (inflammation of the cartilage in the ribs and sternum). That was 4 years ago now and every time I had any sort of pain in that area I wrote it off as costochondritis.

    Fast forward to about a year and a half ago and I get the same symptoms but this time I also get a mix of sharp and dull pains on my upper left abdomen that would come and go throughout the day. Each episode came and went every few weeks or so.

    However, about 2 and a half months ago, I started experiencing worse pain across my upper abdomen, both sharp and dull, as well as a soreness in my sternum and lower ribs. I made the mistake of thinking it was something of the same and waited two weeks before I sought medical help.

    I’m from the UK and I’m currently studying in Canada so it is a difficult to get treatment since I have my own doctor here. So I went to get looked at and I explained what I was feeling. Doctor basically just pressed around my stomach and prescribed me with Pantoprazole for 6 weeks and was told that it should get better soon. 2 weeks later and I only got worse. The pain became a constant dull and gnawing pain across my upper abdomen and lower right abdomen with a sharp pain that comes and goes throughout the day.

    I went to another hospital, told them what I was feeling. They did blood and urine test which was ‘unremarkable’ and did an ultrasound looking at mainly my liver (they sounded really convinced I had a drinking problem even though at that point I hadn’t drank in months), kidneys, and appendix (because when they pressed on my abdomen in that area and I flinched because of the severe pain), which came out fine as well. I was just told that the PPIs could take up to 6 weeks to work so I should just finish the medication. And since I haven’t had any blood in my stool it shouldn’t be serious.

    Fast forward to 6 weeks and I still have the same symptoms with some days being worse than others. My symptoms laid out are basically: dull and gnawing abdominal pain mainly across the upper abdomen and the lower right abdomen that may be worse after eating, sharp abdominal pain that comes and goes throughout the day, and nausea. As mentioned earlier, I haven’t seen any blood in my stool, no weight loss, vomiting or severe diarrhea either. After reading about CD, apparently the pain in my knees and fingers may also be related to this?

    I’m planning to go back to the doctor’s again to tell them that the PPIs did nothing. But I was just wondering what I might be able to tell or suggest they do as a good test for a possible CD without directly telling them I think it may be CD (since I don’t want to seem like I know better than their medical experience and education). Sometimes it just feels like they just want me out the door as soon as possible and aren’t willing to do all the necessary test to get to the bottom of my ailment. It just makes me feel helpless.

    I’m also a PhD student so there is pretty much a constant pressure leading a baseline level of stress and bad eating habits thrown in. If anyone could suggest some stress management ideas as well as healthy eating ideas/recipes that they think is worth trying for me, I would greatly appreciate it.

    Apologies for the long post and thank you for taking the time to read this and help me. If I do have CD/IBD, I am already relieved that this place exist as a means for getting some help and support. This is one of the few good things about the internet nowadays.


    Intense abdominal pain

    Hi new to this, but need to see if anyone else has experience the same pain as me. I’ve had Crohn’s for 6 years and had surgery to remove part of my large intestine. Recently, I’ve started to get intense abdominal pain that is so bad I can’t sit still or sleep. Been to the hospital twice, gotten a colonoscopy done. GI says it could be a bowel obstruction due to scarring but nothing conclusive. Not sure if I should still keep going back to the hospital happens but all.i know is when the pain hits, I can barely function. Thoughts?

    Weight GAIN with UC

    Hi everybody, I am writing because I am struggling with my weight and the doctor’s don’t really seem to think its an issue.

    Before I was diagnosed I was around 116 and 5’5 lbs. I was small, but I was 19 so makes sense. Ever since diagnosed, I have gained about 30 lbs. I believe around 15-20 of it has been normal weight due to growing, but there is now 5-10 lbs that I need to lose and can’t figure out how to. My old doctor (I moved), told me I should be about 128 lbs, but was not concerned because I was 132. Now, at 24, I am 147 lbs. I am a lot heavier than I look as the nurses and doctors keep saying.

    I eat extremely healthy and always listen to my body. I drink tons of water every day, and I work out around 5x a week. I just can’t seem to lose any weight/ stop looking so puffy. I have been trying for 2 years and the scale just consistently goes up.

    My doctor currently doesn’t prioritize my weight, as she is glad that I have been feeling relatively healthy for the last year. I have occasional flare ups, but struggle mostly with sleeping, bloating, and energy.

    My doctor just says to eat more and work out, but I am! I seem to have a few extra lbs that wont go away no matter what.

    Wondering if anyone else struggles with weight loss with UC. I wish I could diet and eat salads, but that is not an option for me. I can eat very minimal vegetables and I eat almost no meat.

    Does anyone else struggle with weight loss? Any ideas of something IBD related that could be causing this?



    Just now I had another filling come out. This is around the 5th or 6th one. Since I have had Crohn’s I have had 6 root canals, and had to have 2 teeth pulled.. Is this due to my Crohn’s? I heard that it can affect your teeth.

    Is it possible to have IBD and not show up on colonoscopy

    For the past 2 years I’ve been having chronic diarrhea, cramping in my lower right abdomen (but sometimes left). I’ve cut out almost everything from my diet including gluten but I’m constantly sick (going to the bathroom 5-9 times a day when I work out it’s more 12-15 times a day). My 1st cousin has ulcerative colitis and I had blood in my stool occasionally so I was so sure I had that.
    But I just had a colonoscopy and my dr said it looked clear but they did take some biopsies and I have a follow up in a week. I am just so worried about being told I am faking or that it’s just IBS when I am sick 24/7 and have already tried cutting everything out of my diet. I was just wondering if anyone has any other experiences similar to this so I know what to expect moving forward?

    What is your favorite form of movement?

    Hey All!

    As a Health Coach and Crohn’s patient, I highly value working out, however, I am always mindful to not push my body too far physically and emotionally.

    My go-to workouts include Barre for sculpting, Pilates for toning/stretching, and Yoga for mind & body benefit. And, I work out 3-4 times per week to give my body rest but maintain a healthy workout routine, as it is important to work out to keep a healthy metabolism, immune system, and overall strength.

    What are your favorite workouts? Why do you like them?

    What are your "safe foods" that never make you sick?

    When I was flaring, I often felt like there was literally nothing I could eat that wouldn’t make me feel sick. However, the truth was there were at least 5 items that I could always have (chicken broth, eggs, avocado, rice, etc.) that would be gentle on my GI system.

    It honestly made me feel better emotionally knowing I could still enjoy some foods that didn’t make me sick, and I knew that if I was ever traveling I could pack some of these items and never be stranded without something to eat (which is HUGE!).

    What are some of your go-to “safe foods” that you know when all else fails, you can at least eat these and still feel well?

    IBD symptoms

    Hi guys I have right sided abdominal pain and burning,diarreah day and night,fatigue, bleeding, bloating hot sweats.or chills, and a swelling above right side rib, I can hardly eat anything, I’m going through the testing process a stool test was positive and blood, does this sound like IBD, I really am struggling to cope with all these symptoms I had my gallbladder removed a year ago and since then my symptoms have gotten progressively worse, I’m waiting for another appointment at the minute too I really need help to know how you guys cope with the symptoms thanks everyone

    CD and alcohol

    I’m newly diagnosed, and used to like to have an occasional glass of wine while out with friends. Lately, I absolutely do not feel like it. Does alcohol cause issues?

    Newly diagnosed

    So I’ve been struggling with stomach problems for 10 months now and the doctors kept on trying to tell me it was something else. After finally being tested I’m being referred to hospital to get more answers.

    Obviously I’m worried but also relieved. How did people cope when they first got the news. Also what should o expect from the first few months

    How do you balance your IBD with life’s errands and chores?

    We’ve heard from a lot of our community members that housework, chores, and the day-to-day errands that come with life can be greatly impacted by their IBD. Fatigue can make it impossible to get anything done, flares can take away your free time, and the emotional impact of IBD can make you feel bad about all of it.

    For those of you living with IBD, what tips do you have for balancing your health and the daily tasks of life? What advice do you have for those who are struggling with guilt because they can’t get it all done? Or how have you balanced the workload with friends and family?

    We’d love to hear your thoughts!


    Had Crohns over 30 years. Many resections, only about 6 feet of intestines remains. Been on Humera for 10 yrs, doing well. Routine scope in Oct.2016, showed lesions all through remaining bowel. Blood work shows I have developed antibodies to Humera. Will be starting Entyvio next week. Anyone have experience with it? Thanks

    Trouble with biologic drugs

    I am looking for others who gave become much worse since using biologic drugs. I know I am not the only one I hear it from nurses in the hospital and waiting rooms meet people who know of someone. Yet all the forums seem to be sponsored by drug companies. Could things be sensored? I have had crohns from 26 years and tried 4 biologics. I never had so much as a mouth sore in 24 years with crohn’s before trying a biologic. Since I have had iritis, erythema nodosum, pyoderma gangrenosum, horrible pain in my joints. A severe headache and 3 aneurysms in my brain found after drug discontinued and headache gone but previous scans did not show them. U have been much worse with fatigue, pain and concentration. Are there others with previous experiences these symptoms and stiff body pain and the “drug induced lupus” is supposed to be reversible but I would give anything to feel as good as I did before the biologics. Is there anyone out there to relate. My medical advice is to take a 5th biologic drug but I am scared to do that. What I’d I add something worse to the above list. I know my experience is rare and I had short periods of time that the biologic worked great without side effects I am not saying they are bad for everyone but for some I worry they are extremely dangerous I think my immune system has been made more aggressive by them

    Odd — Body sweats at night but never when a fever is active

    It is my sweetheart who has Crohn’s, not I, but she has no energy to engage the Internet to find relief, so I am helping.

    Crohns for 20+ years. As of 2016, “in remission”. Late 2016, started to have a health meltdown which eventually resulted in hospitalization, electrolyte loss, extreme weight loss and eventually ulceration in the colon. SIBO too. Not fun at all. probably, this will be later merely referred to as a ‘flare’ in her medical records. She does not take any medication other that colestipol (for bile salts/diarrhea symptoms), ‘self-medicates’ entirely via diet and nutriceuticals for many years, not strong enough to work with oregano oil (as gut antibacterial) yet.

    In October of 2017, she suddenly developed ‘night sweats’ every evening and this continues to date (more than three months). Almost 100% chance of completely sudden drenching head-to-shin at approximately 30 minutes after retiring. Often 3-4 different times during the evening, complete changes of bedclothes, and reposition to a dry spot in the bed with different wrapping towels. There are no ‘chills’ before the sweat beads suddenty break out all over the body. There is a slight smell to the sweat (more of a m’mineral’ scent rather than something like a ‘body odor’). She is fatigued from lack of sleep and spends her days doing laundry.

    Her gastro doctors shrug and say these things sometimes happens for Crohn’s patients. Not helpful at all, unless she were willing to take random prescribed drugs or heavy antibiotics, which are non-starters for her.

    Here is the one interesting point we have noted. She *never* gets night sweats if she has a low-grade fever (such as due to flu or some other condition). Recently she was so relieved to have contracted a fever because she got the first full night of restful sleep in many months. I have been reading everything I can find about this kind of sweating and never have I seen any discussion about this relation. So one question is how to temporarily INDUCE a low grade fever, so she can get some rest periodically … I have read the taking capsacin can do this, any others ideas?

    Now, you might be wondering why she is not working more directly on the colon infection that has led to the ulceration, which is probably the source of the inflammation which is the source of the night sweat. It’s complicated, but basically she has learned over the decades that taking random medications (even one time) has led to months or years of side effects. Also, doctors are not really to be trusted as they rarely wish to be a ‘partner’ to help with the health in a natural way. That the colon infections started just after an unnecessary colonoscopy is just one example of why blind trust in doctors is not going to be granted.

    Fatigue Fatigue Fatigue!

    Hi all
    I’m a 47 year old woman with small bowel Crohn’s. Since the onset of this illness 15 years ago my overarching and by far most debilitating symptom is fatigue, I mean literal bed bound at times fatigue – prior to diagnosis I was so fit and healthy I ran marathons yet now I could easily be mistaken for a Chronic Fatigue Syndrome patient. This fatigue slammed its way into my life and has never left whether I’m in a flair up or not it’s always with me. Does anyone else suffer in this way? Any tips or advice? I’ve tried so many natural, herbal and alternative remedies but nothing helps. My life has slowly become smaller and smaller – I feel buried alive…..
    Thank you for reading

    Strange IBD Symptoms

    There are a lot of strange or unexpected symptoms of IBD. Which symptom or experience has surprised you most since your IBD diagnosis?

Viewing 20 topics - 1 through 20 (of 56 total)