I've had UC since I was 12, I'm now 24
This post is a bit all over the place so forgive me. My diagnosis changed the trajectory of my life drastically and I've never managed to get myself back on track, the crippling anxiety it has given me has caused me to become very self destructive to a point where sometimes I'll stop taking my meds because I feel as though I deserve the pain. I'm now at a point where I'm truly just sick of what I've become, there's so much to it that I couldn't possibly fit it all on here, but to stay short and sweet I'd like to ask others with the condition how they've managed to cope, what you do to minimize symptoms and keep your head in a positive place. I feel very much like I've caused more harm to myself than the UC ever could alone and I feel embarrassed for not being able to deal with it 12 years on. I'm not really sure what questions I have I guess this is sort of a vent of frustration, I guess I'd just like to hear that I'm not alone in this mindset. I'd like to ask what others do to manage symptoms, I just really don't know what I can do to make leaving the house easier, I'd like to be confident in the fact that I won't have any urgent bowel movements while I'm out or have to hide pain. I really wanted to eat and drink the things I always had and that's what I did, now I guess I'm a bit lost on what kind of diet and lifestyle I could get symptom relief from to help ease my anxiety. As we all know Anxiety of UC creates a vicious cycle, I'm just to far in to pull myself out and hearing what others have done to manage their symptoms may help me get past that first step.
I'm so glad you are reaching out. The first step to improving is asking for help. That was such a hard thing to do when I was first diagnosed. I tried to handle it all on my own and not only is it physically hard but it drains you mentally and spiritually. My first eye opening experience was realizing that healing is not all physical. Your spirit and mind are just as important. I reluctantly saw a therapist about 9 years into being diagnosed. This I so wish I would have done earlier. Therapy is essential. This diagnosis is not easy and we need therapy. So I would highly suggest finding a therapist. Many do their sessions over zoom which is great. Next, as far as caring for my physical symptoms, diet is a big component for me. I eat mostly organic. No wheat, excess sugar, processed foods, spicy food. Generally, when i home cook my meals that is when I feel best. Fish is always a great idea. Cooked or steamed veggies. Lots of water. No soda. No coffee. I take my medicine daily. I try to do low impact work outs four days a week. Sunshine is important. Everyday you need to get in the sun and breathe fresh air. Stretch. Get into a routine. I also take CBD oil, L-Glutamine, Vitamin D, Multivitamin and probiotic. -Elizabeth (team member)
