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Read conversations, start a discussion, and connect with others about inflammatory bowel disease.

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Trying to Find a Diagnosis

Trying to find a diagnosis. One Sunday in August of 2022 I felt constipated and then became so nauseous that I started vomiting. I started to sweat profusely. After 8...

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Newbie looking for help.

Hi.. I'm a first time poster. And to be honest I'm not certain I have IBD. I've had distended intestines off and on for many years, that were not much...

Active today

Knock-down, drag-out FATIGUE

Tell us: What does your fatigue feel like? (And if you have any tips for combatting it... Lay 'em on us!)...

Active today

How do you lower cholesterol when you have IBD?

I have been in and out of remission with UC for 29 years. You could say that most of that time my diet was not very healthy. Most of the...

Active today

Home Health Infusions

Hi all! Wondering if any of you on infusion medications receive regular home infusions instead of at the hospital or an infusion center. I have previously done both (hospital and...

Active 3 days ago

Do you experience any unexpected symptoms?

What is an unexpected Crohn's or UC symptom that you have experienced or are experiencing, and how do you manage it?...

Active 4 days ago

What are some ways you relieve your boredom while relieving yourself?

Let’s face it, living with IBD means we’ve all become a little too familiar with the porcelain throne. But hey, why not make the most of it? Do you play...

Active 5 days ago

Been on Remicade for about 3 months for UC-looking for others feedback

I have moved onto Remicade after failed experiences with Humira, Entivio, and Rinvoq for my treatment of UC! (got blood clots from Rinvoq) I am now on Remicade for about...

Active 6 days ago

Colostomy Bag

I've had multiple surgeries since being diagnosed in 2011 and am at the point where my next surgery would be to have a colostomy bag. I've been trying my best...

In your opinion, what is the worst symptom of Crohn's or colitis?

What is the number one symptom you wish would just instantly disappear?...

Passing worm like stuff. Looks like rice noodles

Can these be rope worms, so called, from mucosal sloughing. What does it mean?...

What are some infusion medication for Crohns disease?

I am currently using Pentasa for my Crohns disease, but with an MRI my gastro guy says there is active inflammation. I had been using it for at least 10+...

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